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Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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Image of a baby's feet being held by an adult's hand
Meet the Panel Calling for Newborn Screening for Rare Conditions
Faster diagnosis is vital The first speaker on the panel, Rob Burley, Director of Care, Campaigns…
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research
The latest FSHD research updates from the FSHD Society’s 30th annual International Research Congress
Last week I had the pleasure of attending the FSHD Society’s 30th annual International Research…
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carers week logo
Recognising and supporting carers in the community, and the challenges they face
As well as awareness, the week is also designed to help those who don’t necessarily identify as a…
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Image is of a researcher with blue gloves on holding a test tube and pipette
Scientists identify a new treatment approach for Charcot-Marie-Tooth
CMT is a genetic condition of the nervous system that affects approximately 1 in every 2,500 people…
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Image of 7 volunteers in their MDUK Orange T-shirts holding cakes, balloons and in front of a table of fundraising materials
‘As a shy teenager, volunteering really pushed me out of my comfort zone – for the better’
I first got into volunteering while doing my degree in public relations. It was that classic case…
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Image is of a researcher with bright green gloves on filling out a form. Over the top is an orange banner that says 'Get Involved' in capitalised white font
Supporting someone living with myasthenia gravis – share your experience to further new treatment decisions
Reviewing the impact of myasthenia gravis on caregivers An important factor in NICE’s decision…
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Professor Volker Straub standing in a windowed hallway, smiling at the camera
(Sky)dive into research – my chat with Professor Volker Straub
Researchers often highlight the importance of teamwork. I worked in an academic environment for…
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Group of runners at the Oxford Town and Gown all running towards the camera
Meet the #TeamOrange runners going the distance at Bidwells Oxford Town & Gown 10k to help fight muscle-wasting conditions
We are excited to welcome the thousands of runners joining us at the historic Bidwells Oxford Town…
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Blog
Image of an auditorium with a projection of a presentation that reads 'Welcome to the 16th UK Annual Neuromuscular Translational Research Conference 29th and 30th March 2023'
Recap from the 16th UK Neuromuscular Translational Research conference 2023
The conference took place in London on the 29 and 30 March 2023 and was officially opened by…
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Blog
Research lab image of labelled bottles
New findings may increase the speed of research into treatments for Duchenne muscular dystrophy
Future research into treatments for Duchenne Muscular Dystrophy (DMD) could be made faster and…
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