News

NHS England and Patient Advocacy Groups have recently been focused on identification of hospitals with the right expertise to treat eligible adults who have SMA with nusinersen.

Six out of 10 supermarket chains do not have a single Changing Places toilet, according to research by Muscular Dystrophy UK.

Calls for cough assist machines to be NHS funded after Derby and Derbyshire CCG introduce new policy removing funding

World Toilet Day 2019 aims to raise awareness about the 2.6 billion people worldwide who don’t have access to toilets

The General Election is on 12 December 2019. We know that every day counts for people living with a muscle-wasting condition, but do all the Parliamentary candidates know that?

Britain’s top chefs on stage after creating a dinner, hosted by Prue Leith at Porchester Hall

A joint survey for the paediatric SMA Community to gather information about people’s experiences of trying to access Spinraza.

Andy Brown, 47 from Southport, has run 5k every day in the last year – in support of Bertie Kay, his young friend who was diagnosed with a rare muscle-wasting condition in 2014

Rowley Leigh, Richard Corrigan, Skye Gyngell and the Galvin Brothers are among the UK’s top cooks who will produce an epic dinner, hosted by Prue Leith,

On the three year anniversary of the Disability Confident scheme (November 2nd), the Department for Work and Pensions have announced changes to “help businesses achieve their goa