PREFER is looking for volunteers living with myotonic dystrophy or mitochondrial disease
As part of the IMI PREFER project, we’re working with Newcastle University to conduct focus groups for people with myotonic dystrophy type 1 or mitochondrial disease.
Read more-
Nuclear Technologies company adopts Muscular Dystrophy UK as Charity of the Year for 2019
19/02/2019Workers at TÜV SÜD Nuclear Technologies have decided to support Muscular Dystrophy UK throughout 2019 in a bid to help beat muscle-wasting conditions.
-
Royal Holloway lab visit for Gifts in Wills Week
16/02/2019Supporters who have pledged a Gift in their Will to Muscular Dystrophy UK were invited to visit the research lab at Royal Holloway University.
-
Spinraza set to be approved in Scotland for SMA Types 2 and 3
13/02/2019Spinraza – the first treatment for spinal muscular atrophy (SMA) – is due to be made available on the NHS in Scotland for children and adults with SMA Types 2 and 3.
-
Your questions on Spinraza answered
13/02/2019We have heard today that, subject to sign-off, Spinraza will be available on the NHS in Scotland for children and adults with SMA Types 1, 2 and 3 from April 2019.
-
Race starter Rhys
06/02/2019A five year old Leicestershire boy who has muscular dystrophy will fire the gun to start the third Town and Gown 10k run
-
Spinraza assessment delays highlighted in parliamentary debate
30/01/2019The continued delays in the assessment process for the spinal muscular atrophy (SMA) treatment Spinraza were highlighted by MPs in a House of Commons debate yesterday.
-
New study investigating how Duchenne affects the brain
29/01/2019Researchers at Great Ormond Street Hospital (GOSH) are carrying out a research study to find out more about the emotion system of the brain in boys with Duchenne.
-
New online course for teaching and education staff launched
29/01/2019A new online course has launched for teaching and education staff working with secondary school children with a muscle-wasting condition.
-
Family’s campaign for Spinraza gathers momentum
25/01/2019A family’s petition to make Spinraza – the first treatment for SMA – available for people with the condition has received more than 130,000 signatures.
-
Tesco commits to building more Changing Places toilets in stores
23/01/2019Tesco has committed to building Changing Places toilets in selected stores, we can announce today.