All your questions answered on Spinraza
Answers to all of your questions on what Spinraza is and what needs to happen to ensure access for all
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Meet the children who could benefit from Spinraza
14/08/2018Meet three families hoping for Spinraza access - and one family who now have it
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Breaking news: NICE not recommending SMA treatment Spinraza on the NHS
14/08/2018Initial guidance from NICE does not recommend SMA treatment, Spinraza, for use on the NHS.
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Ex-rugby player dad to tackle the Great North Run
10/08/2018Roy is preparing to take on the world's largest half-marathon, the Great North Run this September in support of his son Owen.
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Using a cough assist machine: Kerry’s story
07/08/2018Tackling the postcode lottery in accessing this vital respiratory equipment
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PIP Summer of Action
06/08/2018We are supporting people with muscle-wasting conditions and their families to meet with their local MP about PIP.
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Positive preliminary results from CMT trial
31/07/2018Acceleron has announced interim results from its ongoing trial testing ACE-083 in adults with CMT.
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New support days for families from South Asian backgrounds
31/07/2018Events are being held in Slough and Birmingham
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Department for Transport announces £300 million investment for Inclusive Transport Strategy
25/07/2018An announcement by the Department for Transport to invest £300 million in making railway stations more accessible has been welcomed by Muscular Dystrophy UK.
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Cognitive behavioural therapy could be beneficial for people with myotonic dystrophy
23/07/2018A landmark trial has shown that cognitive behavioural therapy (CBT) can benefit people with myotonic dystrophy type 1.
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Trailblazers celebrate 10 year anniversary at Parliament
20/07/2018On Thursday July 12 Muscular Dystrophy UK’s Trailblazers celebrated their 10 year Anniversary at the Speakers House.