Four charities call on SMC to approve treatment for Duchenne muscular dystrophy
A group of charities, including Muscular Dystrophy UK, is urging for the approval of a drug that can treat an underlying genetic cause of a life-limiting muscle-wasting condition.
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MDUK CEO is taking on the toughest physical challenge of her career
23/02/2021Catherine Woodhead is embarking on a huge challenge of walking the distance between Land’s End and John O’Groats (LeJog)
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In memory of Valerie Patrick, Vice President of MDUK
19/02/2021It is with deep sadness that Muscular Dystrophy UK has learned of the death of Valerie Patrick following a period of ill health.
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Covid-19: MDUK signs open letter calling for Emergency Support Fund
17/02/2021CEO Catherine Woodhead has added her name to an open letter as part of the #RightNow campaign.
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Breaking Covid-19 news: Extra 820,000 vulnerable people in England to be offered vaccine and advised to shield
16/02/2021A new technology called QCovid can analyse a combination of risk factors based on medical records to assess whether somebody may be more vulnerable than was previously understood.
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Carmela Chillery-Watson receives Prime Minister’s Points of Light award
29/01/2021Carmela will be presented with the Points of Light award - which recognises outstanding individual volunteers who inspire others - in a virtual ceremony next week.
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PepGen secures $45m investment to drive molecular patches to clinic
10/12/2020PepGen’s work into molecular patches seeks to help people with Duchenne muscular dystrophy (DMD) and other muscle-wasting conditions.
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Filmmaker with muscular dystrophy creates award-winning shielding documentary
01/12/2020A filmmaker who lives with a life-limiting muscle-wasting condition and hasn’t left the house in 10 months is taking the documentary world by storm with her film on shielding.
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Join the TalkMD forum – a safe place for people to chat about muscle-wasting conditions
26/11/2020TalkMD is an online community where adults living with a muscle-wasting condition can share their stories, make friends and ask others for advice.
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Gamer takes part in 14-hour arcade challenge for Muscular Dystrophy UK
23/11/2020Stephanie Castelete-Tyrrell has congenital muscular dystrophy and says gaming gives her the freedom to “complete tasks that many people take for granted in the real world".
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Muscular Dystrophy UK praises collaboration between Coronation Street and The Lily Foundation
02/10/2020MDUK is praising a storyline of a child with mitochondrial disease in Coronation Street for sensitively and accurately capturing the reality of the muscle-wasting condition.