New guidance on the safety of medicine use in people with mitochondrial myopathies

Updated guidance on the medicines that should be avoided or used with caution in people with primary mitochondrial disease from the IMP

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    Yell.com mobile maps adds Blue Badge parking

    18/02/2009

    Yell’s latest free-to-use Data charges apply mobile service, Yell.com mobile maps, which provides map-based information has now introduced Blue Badge parking listings.

  • Catherine and her family stayed in the Muscular Dystrophy Campaign  capsules

    First ever Wheelathon for charity

    18/02/2009

    A Manchester mum has completed the first ever 48 hour wheelathon to raise money for the Muscular Dystrophy Campaign.

  • Steroid use and Duchenne muscular dystrophy

    17/02/2009

    The Muscular Dystrophy Campaign has received a number of calls from parents concerned about the possible side effects from steroid use and Duchenne muscular dystrophy.

  • New School Network launches

    17/02/2009

    The Muscular Dystrophy Campaign has introduced a new Schools Network which is designed to help all children with neuromuscular conditions.

  • BA boss and TV presenter Ben Shephard present a cheque to Jay Solanki

    BA present £2,000 cheque thanks to employee

    17/02/2009

    The Muscular Dystrophy Campaign were presented with a £2,000 cheque from airline giant British Airways.

  • Lobbying for better services outside Parliament

    Raising standards of care

    17/02/2009

    This was the call from the Muscular Dystrophy Campaign urging the National Institute for Health and Clinical Excellence (NICE) to develop a clinical practice guideline for Duchenne

  • Trailblazers attend NCVO campaigning conference

    15/02/2009

    On Wednesday 18 February 2009 London Trailblazer, Suliaman Khan will be attending the National Council for Voluntary Organisations (NCVO) Annual Conference in London.

  • The latest news from the PTC124 Clinical Trial

    10/02/2009

    Recruitment of individuals to participate in the latest phase of the PTC124 clinical trial has been completed two months ahead of schedule.

  • New mechanism for Emery-Dreifuss muscular dystrophy

    05/02/2009

    Scientists in the United States have suggested a possible mechanism responsible for the symptoms of autosomal dominant Emery-Dreifuss muscular dystrophy.

  • David Allen breaks the bank

    27/01/2009

      Seventeen year old David Allen who has Duchenne muscular dystrophy and lives in Sheffield has taken the Royal Bank of Scotland to court and won, after his local branch

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