PREFER is looking for volunteers living with myotonic dystrophy or mitochondrial disease
As part of the IMI PREFER project, we’re working with Newcastle University to conduct focus groups for people with myotonic dystrophy type 1 or mitochondrial disease.
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New research on the accessibility of roads
29/11/2018Recommendations published on how to improve the accessibility of roads.
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New FSHD mouse model treated with gene therapy
26/11/2018A recent study has demonstrated the value of a new mouse model of facioscapulohumeral muscular dystrophy (FSHD).
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Muscular Dystrophy UK Premiership Preview Week Three
22/11/2018Read about the upcoming fixtures this weekend.
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New report on gaps in mental health services launched in Parliament
21/11/2018The APPG for Muscular Dystrophy has launched a report on mental health support
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World Toilet Day 2018
19/11/2018World Toilet Day is a chance to raise awareness of Changing Places toilets
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43 Marathons
16/11/2018Would you consider running more than 43 marathons in one year to raise funds for Muscular Dystrophy UK?
Southport resident Andy Brown will be doing just that from the 18 Novemb
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Mitochondrial myopathy trial recruiting in the UK
15/11/2018Stealth BioTherapeutics has initiated a phase 3 trial to test elamipretide in individuals with primary mitochondrial myopathy.
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NICE statement on Spinraza appraisal
12/11/2018NICE has released a statement today on the latest situation regarding its appraisal of the spinal muscular atrophy treatment Spinraza (nusinersen).