Hospitals to receive funding for Changing Places toilets
Ten hospital trusts will receive a share of £500,000 to install much-needed Changing Places toilets at 16 sites across England
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UK AI first to help nearly half a million with chronic conditions
21/10/2019Four UK health charities and a digital social enterprise are coming together to harness the power of artificial intelligence (AI) for good
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60 years of progress together: National Conference 2019 heralds an exciting new era
16/10/2019The 2019 National Conference was held on Saturday 12 October and reflected on 60 years of progress and the exciting opportunities ahead
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Real-world data study in FSHD
15/10/2019Facio Therapies has announced the completion of a ‘real-world data’ study monitoring the progression of FSHD and its impact on daily life.
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Cambridgeshire mum runs Town and Gown in son’s memory
07/10/2019Dawn Pammenter, 47, has signed up for her fifth 10K Newton Cambridge Town and Gown run – in memory of her son Jamie who died almost exactly one year ago
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Becker muscular dystrophy Awareness Week 2019
06/10/2019Today marks the start of Becker muscular dystrophy Awareness Week (6-12 October). About 2,400 people in the UK have Becker muscular dystrophy, almost all of whom are male.
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Positive results from LGMD gene therapy trial
04/10/2019Sarepta Therapeutics have announced new data from its trial testing SRP-9003, a gene therapy for limb girdle muscular dystrophy (LGMD) type 2E.
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Update on oral SMA drug
02/10/2019PTC Therapeutics today announced data demonstrating the ongoing benefit of risdiplam for the treatment of all types of spinal muscular atrophy (SMA).
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Robbie Williams’ father sings at annual charity night
02/10/2019Over 70 guests, including former Manchester United players from the 70’s, 80’s and 90’s, were entertained by Restaurateur Michele Pucci
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Charcot-Marie-Tooth Awareness Month 2019
01/10/2019Today marks the start of Charcot-Marie-Tooth (CMT) awareness month 2019. Find out more about CMT and help raise awareness of the condition.
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Limb Girdle Muscular Dystrophy Awareness Day 2019
30/09/2019Today is Limb girdle muscular dystrophy Awareness Day 2019. MDUK is here for anyone affected by a muscle-wasting condition such as LGMD from the moment of diagnosis and beyond.