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Our £1 million investment to transform clinical trials for Charcot-Marie-Tooth disease
July 15, 2025
Our work with partners to speed up the introduction of newborn screening for Spinal Muscular Atrophy
July 9, 2025
How we’re supporting the future of research into muscle wasting conditions
July 4, 2025
Second treatment for myasthenia gravis not approved for NHS use in England
June 26, 2025
New FSHD treatment shows early promise in clinical trial
June 16, 2025
Our Young Ambassador Carmela makes history as youngest ever MBE
June 13, 2025
“It’s a fitting legacy for my son”: Our Patron Ian Corner recognised in King’s Birthday Honours List
June 13, 2025
Treatment for myasthenia gravis not approved for NHS use in England
June 4, 2025
Volunteers’ Week – thanking our volunteers
June 2, 2025
Development of Duchenne muscular dystrophy treatment PGN-EDO51 stopped
May 29, 2025
Givinostat access: progress made and the work still to do
May 23, 2025
A potential treatment for Pompe disease shows future promise
May 21, 2025