Muscular Dystrophy UK announced as charity partner of Wealdstone FC
We’re delighted to announce we will be the official charity partner of newly-promoted Wealdstone FC for the 2020/21 season.
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Survey for adults with SMA
20/02/2020We are working with SMA UK and TreatSMA to gather views of adults with SMA about Spinraza.
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New guidance on the safety of medicine use in people with mitochondrial myopathies
13/02/2020Updated guidance on the medicines that should be avoided or used with caution in people with primary mitochondrial disease from the IMP
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Emma Vogelmann reviews MOVING UP
07/02/2020Emma Vogelmann took over as Work Experience Development Officer at Moving Up six months ago.
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Kuflink and Monty Panesar raising awareness on Go Orange day
07/02/2020Kuflink and international cricketer and MDUK ambassador, Monty Panesar, ‘revving up’ three supercars and swapping their normal attire for bright orange clothes.
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Quality of life study into Duchenne
05/02/2020Research is being carried out looking at the impact of Duchenne on family carers.
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New publication gives insights into the discontinued DMD drug, ezutromid
31/01/2020The results from the MDUK-funded research project gives insight into the drugs, ezutromid
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Who Cares. VAULT Festival. South London February 21-23
29/01/2020As a society need to do better at taking down the barriers for people in accessing theatre - and that starts with the stories we choose to tell.”
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Update from the European Neuromuscular Centre
29/01/2020The ENMC is an international organisation that supports research for neuromuscular conditions and strives to facilitate communication among scientists and clinicians.
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Hospitals to receive funding for Changing Places toilets
24/01/2020Ten hospital trusts will receive a share of £500,000 to install much-needed Changing Places toilets at 16 sites across England
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