New £30m fund to install Changing Places toilets in existing buildings across England
Local authorities will soon be invited to ‘opt in’ to receive a proportion of the £30m funding, based on need, to install facilities in existing buildings their communities.
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Tower of London makes history with the introduction of new Changing Places facility
03/12/2020Changing Places at the Tower of London
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SMA research project update- The potential of an existing drug to treat SMA
01/12/2020Dr Melissa Bowerman is investigating whether a commercially available drug that targets the body’s metabolism could be a potential treatment for SMA.
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Filmmaker with muscular dystrophy creates award-winning shielding documentary
01/12/2020A filmmaker who lives with a life-limiting muscle-wasting condition and hasn’t left the house in 10 months is taking the documentary world by storm with her film on shielding.
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SMA care guide for families launches online
30/11/2020A new online family-friendly guide to the SMA standards of care has been launched after MDUK worked in partnership with Treat-NMD and other SMA charities.
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Join the TalkMD forum – a safe place for people to chat about muscle-wasting conditions
26/11/2020TalkMD is an online community where adults living with a muscle-wasting condition can share their stories, make friends and ask others for advice.
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Gamer takes part in 14-hour arcade challenge for Muscular Dystrophy UK
23/11/2020Stephanie Castelete-Tyrrell has congenital muscular dystrophy and says gaming gives her the freedom to “complete tasks that many people take for granted in the real world".
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MDUK’s Town and Gown launches the Cambridge Festival of Running
20/11/2020Cambridge Town and Gown is joins forces with the TTP Cambridge Half Marathon to launch The Cambridge Festival of Running,
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Today is World Toilet Day 2020 – why are Changing Places toilets so important?
19/11/2020World Toilet Day 2020 aims to raise awareness about the 2.6 billion people worldwide who don’t have access to toilets
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Looking at microdystrophin in the heart
11/11/2020Dr Federica Montanaro, at the UCL Great Ormond Street Institute of Child Health, is leading an important piece of research into heart disease in Duchenne and Becker MD.
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Purple Tuesday: Former para-athlete calls for overhaul of disabled customers’ experiences
03/11/2020Chloe Ball-Hopkins, an ambassador for Muscular Dystrophy UK, speaks on the importance of Purple Tuesday for improving the customer experience for disabled people.