Gamer takes part in 14-hour arcade challenge for Muscular Dystrophy UK
Stephanie Castelete-Tyrrell has congenital muscular dystrophy and says gaming gives her the freedom to “complete tasks that many people take for granted in the real world".
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Roche extends Risdiplam compassionate use programme
11/06/2020Roche, the pharmaceutical company behind the SMA treatment Risdiplam, has extended its compassionate use programme to potentially include patients who cannot receive Spinraza becau
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NICE and NHS England publish more Spinraza Q&As
09/06/2020NICE, NHS England and NHS Improvement have taken advice from clinical experts and consulted with patient advisory groups Muscular Dystrophy UK, Treat SMA, and SMA UK to produce thr
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Covid-19: an update on shielding
03/06/2020Muscular Dystrophy UK is calling for more detail from the Government on its advice for people who are shielding.
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Our new campaign, Walk with Carmela, aims to raise £1m
01/06/2020Muscular Dystrophy UK has today launched a campaign encouraging people returning to school or work to walk and donate £3.
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NHS England and NICE issue Spinraza Q&As
19/05/2020NICE, NHS England and NHS Improvement have taken advice from clinical experts and consulted with patient advisory groups Muscular Dystrophy UK, Treat SMA, and SMA UK to produce two
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Virtual Celebrity Sports Quiz has a second round
19/05/2020Our second Virtual Celebrity Sports Quiz is coming to you live on Wednesday 20 May at 8pm.
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European Commission approves SMA treatment Zolgensma
19/05/2020The SMA gene therapy Zolgensma has today been granted conditional approval by the European Commission (EC).
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Request for NICE to reconsider the decision to suspend the appraisal process for risdiplam
07/05/2020Joint letter to NICE regarding the suspension of the appraisal process for ridisplam
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Statement: Cancellation of 2020 research Grant Round
06/05/2020Muscular Dystrophy UK regrets to announce that, due to the financial effect Covid-19 is having on our ability to generate income, we are cancelling the current Grant Round in 2020.