MDUK Muscles Matter 2021 – Monday 14 June
A round-up of the MDUK Muscles Matter 2021 myasthenia gravis seminar on Monday 14 June
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International Mitochondrial Disease Covid-19 Data Study
05/02/2021The research team hopes that this study will help to understand how Covid-19 affects people with mitochondrial disorders
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Exercise advice for adults with a muscle-wasting condition
05/02/2021Updated exercise advice for adults with muscle-wasting conditions
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Survey reveals how Covid-19 has affected activity levels of disabled people
03/02/2021The findings come following a survey from Activity Alliance, a charity working to make active lives possible for disabled people.
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Carmela Chillery-Watson receives Prime Minister’s Points of Light award
29/01/2021Carmela will be presented with the Points of Light award - which recognises outstanding individual volunteers who inspire others - in a virtual ceremony next week.
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A new survey on the impact of the pandemic
22/01/2021We are launching a new survey on the impact of the pandemic.
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UK Rare Diseases Framework published
13/01/2021The UK Government and the devolved administrations have published a new UK Rare Diseases Framework.
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AMO Pharma announces clinical trial for AMO-02 in the treatment of Congenital Myotonic Dystrophy
12/01/2021AMO-Pharma announces the initiation of Phase 2/3 clinical trial, REACH-CDM.
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Impact of Brexit trade deal on medicines, healthcare rights and collaboration
08/01/2021Brexit will have a wide ranging impact on the lives of everyone, including people living with a muscle-wasting condition.
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NICE statement on pause to re-evaluation of Translarna
23/12/2020NICE statement on pause to re-evaluation of Translarna
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Cambridge University Hospitals NHS Trust recommends use of risdiplam
23/12/2020Cambridge University Hospitals NHS Trust recommends use of risdiplam