Wealdstone FC launches its 2020/21 Charity Partnership with MDUK
Wealdstone FC launches partnership with MDUK for 2020/21
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Budget 2020: £30m boost for Changing Places toilets
10/03/2020The campaign for more Changing Places toilets is set to get a major boost, with the Chancellor of the Exchequer, Rishi Sunak, set to announce a £30 million investment in tomorrow’
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Detailed guidance on risks from coronavirus for people with muscle-wasting conditions
06/03/2020Guidance on risks from coronavirus for people living with muscle-wasting conditions
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Update: Global Managed Access Programme for Zolgensma
06/03/2020Find out the latest information about the SMA gene therapy access programme.
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British Science Week 2020
03/03/2020For this year’s British Science Week, the theme of which is “Our Diverse Planet”, we’d like to tell you about some exciting research we’ve funded.
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Below standard: our report on the benefits system
27/02/2020People living with muscle-wasting conditions are struggling to get the disability benefits they are entitled to, with many enduring financial hardship and unnecessary appeals.
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Muscular Dystrophy UK to benefit from major On Farm event
24/02/2020Muscular Dystrophy UK will benefit from a major 'on farm' event being planned by the Royal Northern Agricultural Society. Now to take place on Sunday 31st May 2021.
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Survey for adults with SMA
20/02/2020We are working with SMA UK and TreatSMA to gather views of adults with SMA about Spinraza.
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New guidance on the safety of medicine use in people with mitochondrial myopathies
13/02/2020Updated guidance on the medicines that should be avoided or used with caution in people with primary mitochondrial disease from the IMP
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Emma Vogelmann reviews MOVING UP
07/02/2020Emma Vogelmann took over as Work Experience Development Officer at Moving Up six months ago.