A world without limits

We will help speed up and improve the accuracy of diagnosis so that by 2035, no one will wait longer than six months to be diagnosed.

Our focus for the first three years:

• We will campaign for better newborn screening for relevant muscle wasting conditions
• We will invest in research into new indicators and diagnostic tools and better understand the prevalence of people with muscle wasting conditions
• We will educate thousands of healthcare professionals responsible for identifying potential muscle wasting conditions for timely referral

We will reach every person with a muscle wasting condition by 2035, so no one faces this journey alone.

Our priorities for the first three years:

• We will develop a new diagnosis referral service, with tailored support materials for people newly diagnosed with a muscle wasting condition
• We will develop a programme of in reach into neuromuscular centres and clinics, developing staff and volunteers to offer direct and peer support
• We will significantly increase awareness of muscle wasting conditions and the charity so more people can access support when they need it

We will help accelerate the development of new treatments so that by 2035 they will be available everywhere. And everyone will be able to access specialist support when and where they need it.

Our priorities for the first three years:

• We will fund groundbreaking research into new treatments and better understanding of muscle wasting conditions
• We will campaign and influence the NHS across the UK to end the postcode lottery and ensure there is capacity in the system to treat and support those who need it
• We will support the growth of neuromuscular services and workforce through education and quality improvement

We will campaign for a more equal and accessible world and directly support every person who needs it by 2025 to live independently with better physical and mental health.

Our priorities for the first three years:

• We will significantly grow our direct services and review our existing model of support to reach more people with practical and emotional support
• We will campaign for a more just and inclusive society with accessible services and state support to live a full life
• We will grow our community of people affected by muscle wasting conditions to improve self-advocacy and peer support