We fund pioneering research for better treatments to improve people’s lives today, and to transform those of future generations.
Current Projects
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Understanding the factors that impact quality of life in people with FSHD and LGMD
Dr Christopher Morse and his team from Manchester Metropolitan University will work with people affected by FSHD and LGMD to understand the factors that affect their quality of life, with the ultimate goal of developing ways to improve it.
Improving accessibility of bone density scanning for wheelchair users living with muscle wasting conditions
Dr Jarod Wong will lead a study involving people living with muscle wasting conditions and healthcare workers to improve the accessibility and performance of bone density scanning to make monitoring weak bones more straightforward.
Understanding the molecular processes that cause the progression of FSHD
Professor Giorgio Tasca and colleagues from Newcastle University will study muscle cells from people living with Facioscapulohumeral muscular dystrophy (FSHD) to see whether specific genes are switched on or off and where in the cells this happens.