There have been big improvements in treatments for spinal muscular atrophy (SMA). These new treatments can help slow down how quickly the condition gets worse. But they can’t undo damage that’s already happened. If someone has lost movement, treatments can’t bring it back.
That’s why regular exercise and physiotherapy are still really important. They can help keep muscles strong, improve movement, and support everyday activities.
However, many people with SMA struggle to get the right kind of exercise support. Some of the challenges include:
- High costs
- Frequent trips to hospital to get new exercises or check technique
- Not enough physiotherapists available
- Keeping young children interested in doing the same exercises again and again
Researchers are working on new ways to make exercise and physiotherapy more fun, more personalised and easier for people with SMA to do at home.