Breast cancer can happen to anyone. Including those living with a muscle wasting condition. That’s why we’re collaborating with youth-focused breast cancer awareness charity CoppaFeel!
Yesterday, Monday 22 June 2026, newborn screening for spinal muscular atrophy (SMA) was debated in Parliament.
MDUK work tirelessly to ensure people with muscle wasting or weakening conditions can access the healthcare they need, when they need it.
MDUK work tirelessly to ensure people with muscle wasting or weakening conditions can access the welfare and employment they need, when they need it.
Newborn screening is the quickest route to a diagnosis of spinal muscular atrophy (SMA). Early treatment is vital to preventing permanent damage.
Sara shares how PIP helps cover the additional costs of living with a progressive condition, and why the benefits system should better recognise the lifelong nature of progressive conditions.
Be part of London’s newest Half Marathon.
After being diagnosed with LGMD at seven years old, Millie has spent her life adapting to the challenges of a progressive muscle wasting condition. This July, she’s taking on a 150-mile walking challenge to fundraise and improve awareness of LGMD.
Krishan Vara is taking on a series of ultra challenges during 2026 following the loss of his uncle and two cousins, who all lived with Duchenne muscular dystrophy. He tells us why he’s doing this in their memory.
Gerry shares how PIP helps him maintain his independence, the challenges he’s faced navigating the benefits system, and why Muscular Dystrophy UK has been a lifeline.