“I live a full and active life with Duchenne, and so can others.”
By vinnie
Cycling 100km to kickstart fundraising for ‘Declan’s Muscle Mission’
By vinnie
“It’s possible to make a difference now for people like Will”
By vinnie
London to Paris – the hard way! Arch 2 Arc triathlon in support of friend’s son
By vinnie
He’s an inspiration and it’s an honour to run for him
By vinnie
What I have lost and gained living with Duchenne muscular dystrophy
By vinnie
“His new all-terrain wheelchair has given our son his smile back.”
“My son’s biggest wish is for ‘a new medicine because then he might be quicker on his feet.’ It breaks my heart he’s being denied that chance” – waiting for givinostat
“I’ve written the book I wish I’d been able to read growing up.”
By amber sunner
“Whilst there is no cure, the managing of the conditions has improved a lot. For example, Joe’s been taking preventative heart medication thanks to previous clinical trials.”
By ellen moye
“We’re keeping Stuart’s memory alive with a gift in our Will”
By ellen moye
“Inspired by his courage”: Running the London Marathon in memory of my brother
By amber sunner