Attend our London Information Day – a free, in-person event for adults and parents of children living with a muscle wasting or weakening condition.
We’re pleased to invite you to our Information Day in London – a free, in-person event for adults and parents of children living with a muscle wasting or weakening condition.
Whether you’re newly diagnosed, supporting someone close to you, or simply looking to stay informed, this day is designed to offer practical advice, expert insight, and a welcoming space to connect with others.
Open to anyone across the UK, the event will feature a full programme of talks, discussions and opportunities to meet others in the community. You’ll hear from professionals working across research, healthcare and support services, with plenty of time to ask questions and explore the help available through Muscular Dystrophy UK.
What to expect
- Welcome refreshments and a chance to meet the MDUK team
- Opening session with updates on our latest services and support
- Panel discussion featuring our Research Team and guest contributors
- A session exploring the impact of climate change and neuromuscular conditions, led by Professor Sanjay Sisodiya, Consultant Neurologist
- Informative sessions covering:
- Fatigue management
- Benefits and financial welfare support
- Managing mental wellbeing
- Inclusive sport
- Personal stories from members of our community
- Information stands and a free lunch with time to connect
Whether you’re attending to learn something new, ask questions, or simply connect with others who understand, we look forward to welcoming you.
Sign up now to secure your place as spaces are limited.
If the event reaches capacity, we’ll operate a waiting list to ensure everyone has a chance to attend.
Please note: the agenda is subject to change as speakers and sessions are confirmed.