Join us to discuss the state of neuromuscular services and how you think they should change.
Are you based in Northern Ireland?
The Department of Health of Northern Ireland is running a public consultation on its review into neurology services. We need your help to make the case for change.
The review seeks to identify the priorities of future neurology services for the next 10-15 years. The aim is to make services person-centred, joined-up, responsive, evidence-based, and suitably resourced to meet the needs of people living with neurological conditions.
This includes people living with muscle wasting and weakening conditions, and we want to hear from you!
Our charity, alongside SMA UK and Pathfinders Neuromuscular Alliance, are looking for insights, stories, and case studies to feed in our formal response to the consultation.
If you are interested in joining us for a focus group discussion session on Zoom, sign up by clicking on one of the available dates below:
Who can attend?
The focus groups are open to adults living with any neuromuscular conditions, as well as their families and carers.
We regularly hear the challenges you face in accessing healthcare, so please join us and share your thoughts.
This event is being run in collaboration with SMA UK and Pathfinders Neuromuscular Alliance
