We have worked alongside a range of specialist health professionals to develop a care plan that can be completed by yourself and your neuromuscular clinicians.
Care plan
This care plan can be shown to any health professional and helps them to give a tailored approach to your healthcare.
The care plan is designed to be filled in by a person with a muscle wasting condition and the various health professionals you see. This may include a consultant neurologist, neuromuscular care advisor, occupational therapist, physiotherapist as well as cardiac and respiratory specialists.
The care plan includes important information including:
- background information on you and your daily routines
- contact details of your consultants, care advisors and GP
- details about your neuromuscular condition
- the medicines you use
- cardiac, respiratory and anaesthetic management (where appropriate)
If you would like to be sent a printed version of our care plan, or you need extra pages to update your care plan call our helpline on 0800 652 6532 (Mon-Thurs 10am – 2pm),email info@musculardystrophyuk.org or fill out the form:
Neuromuscular care plan
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