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Care plan

We have worked alongside a range of specialist health professionals to develop a care plan that can be completed by yourself and your neuromuscular clinicians.

What is the care plan for?

This care plan can be shown to any health professional and helps them to give a tailored approach to your healthcare.

The care plan is designed to be filled in by a person with a muscle wasting condition and the various health professionals you see. This may include a consultant neurologist, neuromuscular care advisor, occupational therapist, physiotherapist as well as cardiac and respiratory specialists.

The care plan includes important information including:

  • background information on you and your daily routines
  • contact details of your consultants, care advisors and GP
  • details about your neuromuscular condition
  • the medicines you use
  • cardiac, respiratory and anaesthetic management (where appropriate)
Ordering extra pages

If you would like to be sent a printed version of our care plan, or you need extra pages to update your care plan call our helpline on 0800 652 6532 (Mon-Thurs 10am – 2pm),email or fill out the form:

Neuromuscular care plan

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Is this care plan for you?

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We will never share your details with anyone. We will only contact you in the ways that you wish, making use of the information you’ve told us (including your muscle-wasting condition) and publicly available information. We want to make sure what we communicate with you is relevant to your interests. Our privacy policy is available on our website or by phoning 0300 012 0172.

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Our support services

Webinars, Information Days, and support groups for our muscle wasting community. Our life-changing support is here for you.

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Advice for living with or caring for someone with a muscle wasting condition.

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