Throughout the year we hold in-person Information Days across the UK, where you can meet other people, get expert information and advice, and find out more about the services and support that we offer.


What you can expect at an Information Day:
- Hear from experts to help you live well with your condition
- Meet our team and hear about the advice and support we offer
- Connect with others who have a muscle wasting or weakening condition
- Share your own experience, tips, and advice
Upcoming Information Days

Transition to Independence: Northern Ireland Peer Support and Information Day
Friday 24 October 2025
Block 5, Jennymount Business Park, N Derby St, Belfast BT15 3HN
We have teamed up with Pathfinders Neuromuscular Alliance and SMA UK to bring you a day full of information and ideas to help you navigate adulthood with a neuromuscular condition.

Information Day – London
Friday 5 December 2025
Coin Street Neighbourhood Centre,108 Stamford Street, London SE1 9NH
Attend our London Information Day – a free, in-person event for adults and parents of children living with a muscle wasting or weakening condition.

Information Day – York
Saturday 28 February 2026
New Earswick Folk Hall, Hawthorn Terrace, New Earswick, York, YO32 4AQ
Attend our York Information Day – a free, in-person event for adults and parents of children living with a muscle wasting or weakening condition.

Information Day – Birmingham
Saturday 14 March 2026
Edgbaston Park Hotel and Conference Centre, 53 Edgbaston Park Road, Birmingham, B15 2RS
Attend our Birmingham Information Day – a free, in-person event for adults and parents of children living with a muscle wasting or weakening condition.

Information Day – Scotland
Saturday 28 March 2026
Forth Valley College, Grangemouth Road, Falkirk FK2 9AD
Attend our Scotland Information Day – a free, in-person event for adults and parents of children living with a muscle wasting or weakening condition.
Connect. Learn. Share.
