Survey on your experience of neuromuscular care The Muscular Dystrophy UK Centres of Excellence Awards 2023

MDUK is currently assessing neuromuscular centres across the UK for our 2023 Centres of Excellence Awards. The Centres of Excellence Awards acknowledge centres who not only provide outstanding levels of specialist neuromuscular services, but also promote best practice locally and nationally.

If you are an adult living with a muscle-wasting condition or the parent/carer of a child or young person accessing neuromuscular services, we want to hear about your experiences.

As well as finding out information from neuromuscular centres about their services, we also want to hear from people who use those services. MDUK is carrying out a survey of people who access services at neuromuscular centres in the UK to understand their views and experiences of their neuromuscular care.

Results from this survey will be used to provide insight into on-going service development for neuromuscular centres, to highlight what is working well, and what needs improving in neuromuscular care.

How you can take part in the survey

To take please click on this link to begin the survey.

The survey should take approximately 15 minutes to complete.

Please complete the survey by 28th April 2023.

Responses to the survey are anonymous, so all of your answers will be confidential.

If you have any questions or would like help completing the survey, please contact us at

MDUK look forward to hearing your views and thank you in advance for taking part in this important survey.

You can find out more information about the Centres of Excellence Awards here.