Through their family fund, Leap for Luke, Claire has organised a vast number of volunteering and fundraising events raising a substantial amount of money. She also chairs Muscular Dystrophy UK’s Northern Irish Council which advises the charity on local issues and campaigns and which coordinated the work with Members of the Legislative Assembly (MLAs) and health professionals to help set and achieve the charity’s priorities in the region.
Claire works hard to raise awareness of Duchenne muscular dystrophy and MDUK, and has supported many other families living with Duchenne as a volunteer and using her knowledge and experience to help improve services for those living with muscle-wasting conditions.
On receiving the award Claire said:
I feel very humbled to have received the award when I know that there are so many others who work tirelessly for the Duchenne community. This award isn’t for me but for my whole family and everyone who has supported us on this journey and I hope that it will strengthen my position as an advocate for the Duchenne community.
Find out more about Family Funds here. To browse all our volunteering opportunities click here.