Muscular Dystrophy UK is the charity for the 70,000 people living with muscle-wasting conditions in the UK. We bring together people affected by more than 60 rare and very rare progressive muscle-weakening and wasting conditions.

Muscle-wasting conditions are very rare, affecting just over one in every 1,000 people. As a result, some health professionals may never come across anyone with a muscle-wasting condition and may not know much about them. But we do.

Since 1959, we’ve been supporting families living with muscle-wasting conditions. We provide vital information, advice, resources and support for people with these conditions, their families and the professionals who work with them.

Which condition would you like to know more about?

If you’re at all unsure about where your muscle-wasting condition is listed, please get in touch: call us on 0800 652 6352.


  • Kirath Mann

    Latest on NICE assessment of Translarna

    Next steps and how to get involved

    Read more »

  • Shivani from our Advocacy Team

    Alert cards in an emergency are vital

    Vital support during a health crisis

    Read more »

  • microphone

    Your exon skipping questions

    Please send us your questions via our forum

    Read more »

  • Dr Peter Zammit

    Exon skipping for different conditions

    Exon skipping could work for conditions other than Duchenne

    Read more »

Events calendar

  • 22

    Scotland Cross Party Group meeting

    22 April 2015

    Read more »

  • 24

    North West Muscle Group meeting in Blackburn

    24 April 2015

    Read more »

  • 25

    London Bungee Jump

    25 April 2015

    Read more »

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