After hearing Murray’s devastating diagnosis of Duchenne muscular dystrophy, my outlook changed. The initially selfish ambition to help our son has expanded to include all affected by muscle disease… [and] guiding the spending on research is a key element. Muscular Dystrophy UK is very particular about ensuring that decision-making comes from the grassroots upwards. Reviewing the grant applications is challenging, but an experience that I would not miss for the world. I am honoured to work with the charity and the panel.
Mark Field, father of Murray who has Duchenne muscular dystrophy and a member of the Lay Research Panel.
We welcome the involvement of families living with muscle-wasting conditions in our research processes – not just scientists.
Families affected by muscle-wasting conditions are experts in what it means to live with those conditions. Their opinions about what research we should fund and how we communicate it to a wider audience are invaluable. We know their input strengthens the relevance of our research.
You can get involved in our research by becoming a member of our Lay Research Panel:
Lay Research Panel
A panel of people, most of whom are affected directly or indirectly by a muscle-wasting condition. We meet twice a year to review the grants programme and discuss new applications. We have a selection process in place. Find out more about the Lay Research Panel.