We know we can beat muscle-wasting conditions more quickly by working together. There are lots of different ways you can get involved in our work.
Whether you’d like to campaign, fundraise or volunteer with us, you can find out more here. Please join us – we cannot do this without you.
Access to hydrotherapy a concern for families
Families in the UK struggling to access vital treatment
GNE myopathy clinical trial initiated
Ultragenyx announced that the first participant has been enrolled
Facebook chat - 30 June
Join our online discussion on housing adaptations
Bruce Moves a Mile
Bruce will be walking the West Highland Way