Family Funds are a great way to raise funds as a family for our work. The money you raise could go towards research for a particular condition or help with research and support more generally, as well as provide direct support or equipment for your family.
Our family funds
Leo’s Pride Family Fund
Just before their wedding in May 2017, Louise and Mitchell received a call to meet with the neurology and respiratory teams in Edinburgh regarding their young son, Leo.
Phenomenal Phoebe Family Fund
Phoebe was diagnosed in December 2023, at the age of 5, with Facioscapulohumeral Dystrophy (FSHD). After numerous appointments, travelling from Shetland to mainland Scotland and undergoing various tests, Phoebe was finally diagnosed.
Smiley Miley Family Fund
Smiley Miley is a family fund set up by Katie and Christopher after their daughter, Miley, was diagnosed with Ullrich congenital muscular dystrophy in 2024. Miley wakes up with a smile on her face every day, earning her the nickname Smiley Miley, amongst family and friends. She loves playing with the family’s dog, Nico. The two are inseparable together.
Backing Super Jack Family Fund
George’s Journey
Bertie’s Buccaneers
Team Jed
Georgie’s Genes
Team Luca
#Team Ella
Cure4Carmela
Alexandra’s Family Fund for FSHD