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LoveforLouis is a Family Fund set up by Sam and Sarah Jackson for their son, Louis, who has Becker muscular dystrophy.

Joanne and Pedro Fernandes’ son, Luca, has Duchenne muscular dystrophy. They set up Team Luca to raise awareness and funds for Muscular Dystrophy UK’s Duchenne Research Breakthrough Fund.

Luca, was diagnosed with Duchenne muscular dystrophy in November 2013. Luca’s father Pedro says:

On 2 February 2013, Joanne and I were given a new challenge in life. Luca (our world) was diagnosed with muscular dystrophy.”

A muscle biopsy later confirmed that Luca’s condition was Duchenne muscular dystrophy.

Luca is like any other child his age – he runs, jumps and scoots around on his scooter, oblivious to his condition. However, the family have been advised that his symptoms will become more apparent in the next few years.

Pedro and Joanne are appealing to friends and family to support Team Luca. In recent years they have taken part in Muscular Dystrophy UK’s Make Today Count skydive, and taken a team to the Snowdonia Velocity Zip Wire – the fastest zip wire in the world.

Pedro says:

I would love for my son to have a childhood and teenage life, with the same wonderful and unforgettable experiences like I did and enjoyed.”

The team have so far raised an incredible £80,000 to support the charity’s Duchenne Research Breakthrough Fund.

Net proceeds from Team Luca will be used to fund research into Duchenne muscular dystrophy

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