Jack is a bright, cheeky, and fun-loving 9-year-old who lives with Duchenne muscular dystrophy (DMD) — a rare, progressive, and life- limiting muscle wasting condition.
Jackman DMD
Diagnosed at just four, Jack’s journey has been filled with challenges no child should face. He didn’t walk until after his second birthday and now uses a wheelchair part-time. Daily steroids and medications, including Givinostat, help manage his symptoms, but they also take a toll on his energy and mood.
His family has had to fight every step of the way — for accessible housing, for school support, for basic dignity. They were forced to leave their community in Falkirk due to a lack of suitable housing, and even now, accessible homes remain scarce across Scotland. At school, Jack’s needs are often overlooked. Promised adaptations like stairlifts have fallen through, leaving him and his classmates relocated to accommodate his wheelchair, which has led to feelings of isolation and guilt.
“Jack’s journey is not easy, but it’s filled with love, resilience, and determination. He teaches us every day what it means to be strong—not just physically, but emotionally.”
Despite everything, Jack’s resilience shines. He tries to keep up with his brother and friends, even when it’s hard. His family continues to adapt, advocate, and fight for the support he deserves — because while the
world may not always be built for Jack, they are determined to help him thrive in it.
