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Lilian and George Pegg have set up George’s Journey, a family fund for their son George, who has Duchenne muscular dystrophy.

A picture of George with a tie on his head. He is sitting in a wheelchair and he is smiling.

From a very young age, George struggled with crawling and then only began walking from the age of two, while continuing to have difficulty with rising from the floor and climbing stairs. Lilian and George took him for a physical assessment, after which he went under a muscle biopsy. At just three years old George was diagnosed with Duchenne muscular dystrophy.

We were devastated but when we were given the diagnosis Professor Bushby assured us that there was hope for George’s generation.

This hope and optimism has led to the founding of George’s Journey.

The Pegg family – including George himself – have been incredibly active in their efforts to raise funds for Muscular Dystrophy UK. They have organised charity football events, fun runs, karaoke nights, taken on the worlds longest zip slide and most recently George’s brother John followed in his Mum’s footsteps and celebrated turning 16 with a sky dive!

Since setting up George’s Journey the family have raised over £200,000 for pioneering research into Duchenne muscular dystrophy.

You can follow George’s Journey on Facebook

Net proceeds from George’s Journey will be split 80% for research into Duchenne muscular dystrophy and 20% for the family’s welfare

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