On Tuesday (22 March) the Northern Ireland Department of Health/An Roinn Sláinte published the Northern Ireland Rare Diseases Action Plan.
MDUK will today call for improved multidisciplinary care in Northern Ireland at an All-Party Parliamentary Group.
We have joined forces with Spinal Muscular Atrophy UK (SMA UK) and Pathfinders Neuromuscular Alliance to raise concerns of people living with muscle wasting and weakening conditions as a result of potential significant changes at the Belfast Health and Social Care Trust adult neuromuscular service in the coming weeks.
Join us on Wednesday 4 June 2025 for our free Information Day in Northern Ireland for adults living with a muscle wasting condition.
Suzanne is a researcher at the University of Sheffield and Pathfinders Neuromuscular Alliance. She lives with spinal muscular atrophy (SMA). Suzanne shares her latest research projects on what it truly means to breathe, her own experiences of bone health and why this study is important, and her excitement about being back on our Northern Ireland Council.
Eager to raise funds to change the future of muscle wasting conditions in Scotland? Choose your Kiltwalk today!
Reach new heights with the BAC Europa Charity Abseil and change the future of muscle wasting conditions in Northern Ireland.
Reach new heights with the BAC Europa Charity Abseil and change the future of muscle wasting conditions in Northern Ireland.