Learn more about our policies across the organisation.
To achieve our vision of a world without limits for people living with muscle wasting conditions, collaboration is essential. Companies in the pharmaceutical and life sciences sector play a vital role in advancing research, developing treatments and improving outcomes. By working together, we can help drive progress and make a meaningful difference for our community.
We follow a clear policy that guides how we work with the pharmaceutical and life sciences sector, ensuring every partnership supports people living with muscle wasting conditions and protects our independence. Partnerships can play a role in areas such as research, education, and support services, depending on what best meets the needs of our community.
Guiding principles
- We only enter into partnerships that deliver meaningful benefit for people living with muscle wasting conditions. We do this where collaboration can offer direct support or clear long-term impact, and we actively seek opportunities where working together can make a positive difference.
- We are transparent about all our partnerships. We publish information about our partnerships with the pharmaceutical and life sciences sector and follow a clear policy that sets out how we work with companies.
- We protect our independence at all times. We never accept funding that could influence, or be perceived to influence, our priorities, positions, direction or decision making. To safeguard our independence, no more than 10% of our annual income will come from partnerships with pharmaceutical and life sciences companies.
- We speak up when needed. We will challenge pharmaceutical and life sciences companies, and their actions or decisions, whenever they conflict with the interests of people affected by muscle wasting conditions, regardless of any current or past funding.
- We work fairly and without favour. We do not prefer any individual company and therefore seek to work with multiple organisations wherever appropriate, ensuring that opportunities are considered on merit and in line with the needs of our community.
Climate change and environmental issues affect everyone, including our employees and the community we support.
People with muscle wasting conditions are likely to be disproportionately affected as more extreme weather can impact health, pain, fatigue, mobility, and medical supply chains.
Our sustainability policy outlines the steps we’re taking to reduce our environmental impact. If you have any questions, please get in touch with the sustainability working group here.
Key areas we’re focusing on
Transport
The charity’s employees work in a variety of different ways – based in the head office, full-time remote working, or a flexible mixture of both. We ask staff to adopt more carbon neutral forms of travel to work whenever possible to reduce their individual carbon footprint.
All employees (and volunteers where practical) are encouraged to reduce travel by switching to a hybrid model of meetings with in-person and virtual options available to staff and other meeting attendees. At least 50% of all trustee meetings are held virtually to reduce unnecessary travel.
All employees are also able to access the following travel schemes:
- Cycle to work scheme
- Travel card loan scheme
- Octopus electric car scheme
The use of public transport is actively encouraged and if not available, car sharing with other employees is recommended when travelling to events. Staff are encouraged to avoid flying were possible, especially within mainland GB and northwest Europe.
Employees are asked to use our travel provider – Diversity Travel – when booking public transport and accommodation as they are an ethical transport provider and help us track our progress. They hold the Carbon Neutral Standard PA 2060 standard, the ISO 14001 Environmental standard and have 100% carbon neutral website hosting.
In the office
Energy and heating
To save energy and ensure everyone is comfortable, we ask staff to consult the Office Manager instead of adjusting the thermostat themselves. Temperatures vary across the office so we advise staff to experiment with different desks to find the best temperature for them.
We also save energy by turning off monitors and other devices when not in use. Key holders ensure all lights are turned off before leaving the office at the end of the day.
Printing
Our office exclusively uses recycled paper. We encourage staff to keep their printing to a minimum, and to print one test copy before starting a long print run.
Water
We aim to be Water Wise. We have dual flush toilets, automatic bathroom taps and a dishwasher in the office. Staff are encouraged to save water and energy by only filling the kettle with the amount of water they need.
Waste Management
We ask staff to familiarise themselves with the office’s recycling system.
Soft plastic (such as crisp packets, film lids and wrappers) cannot currently be recycled at the office but we hope to provide this soon.
Some coffee cups are recyclable and some aren’t. Staff are encouraged to check the packaging or use a reusable travel mug.
Larger packaging such as cardboard boxes should be flattened and taken to the main recycling bin just outside the office.
Working from home
Although hybrid and remote working patterns are common throughout the organisation and do reduce commuting, there is still an environmental impact of working from home. All staff are given regular guidance on how to conserve energy use when working at home and are encouraged to:
- Work from a part of the home with good natural light to avoid unnecessary usage of electric lighting
- Switch off all devices like laptops, monitors and accessories when not in use
- Only fill a kettle with water that is necessary when making tea/ coffee
- Utilise energy-saving tips for keeping your home warm in winter and cool in summer that are provided by the Energy Saving Trust
Digital footprint
Our digital carbon footprint comes from the technology we use and the systems they connect to.
The biggest environmental impact comes from the hardware itself – the raw materials used and the manufacturing process. To prolong the life of each piece of technology we:
- Look after our equipment by following the charity’s laptop policy
- Turn off devices regularly rather than leaving them on standby. This helps improve performance and reduce wear-and-tear of components
The data centres and networks that store, process and connect the world’s data also have a considerable environmental impact. While most of this is outside our control, there are some practical steps we can take:
- AI has a particularly big environmental impact. We can limit this by considering what tasks benefit from using AI and following the guidance in the charity’s AI policy
- Avoid storing the same files in multiple places, try to clean out your inbox regularly and unsubscribe from newsletters you never read
- Where possible, share documents as links rather than attachments
Materials and Content
To ensure our content is as sustainable as possible, we aim to:
- Provide mainly digital versions of our publications, accessible by QR codes, to reduce printed material where possible.
- Where printing is unavoidable, we aim to print on recycled paper.
When procuring good and services, we aim to:
- Consider the sustainability credentials of our suppliers
- Prioritise durable, quality products that will last longer than cheap alternatives, considering the lifecycle cost not just the cost of the initial purchase
- Minimise single-use materials and favour recyclable or biodegradable materials where items cannot be reused. For example, we use reusable toggles instead of cable ties, and paper cups and pens made from recycled card
- Review the air miles on material coming from other continents and consider print production closer to home. If there isn’t a competitive alternative, we request sea passage when using suppliers from further away
Events
As a charity, putting on events is a key part of our work. Some of these take place virtually or in a hybrid fashion, reducing their carbon footprint and making them accessible to a wider audience. For all our in-person events, we:
- Choose locations with good public transport links (and accessible stations) where possible, as well as accessible parking options. We encourage both staff and volunteers to travel to and from our events by public transport or car share whenever possible.
- Use an external storage facility to store key event items; this is within walkable distance of our head office to reduce the use of vehicles.
- Donate leftover food from meetings and events to local foodbanks.
For one of our events, the Town and Gown 10k series, our headline sponsor Bidwells purchase carbon credits to offset the emissions. The races have been carbon neutral since 2023, minimising their environmental impact while raising vital funds and awareness.
Research
Lab research is essential for understanding muscle wasting conditions and developing new treatments. However, it’s extremely resource and energy intensive. We’re a supporter of The Concordat for the Environmental Sustainability of Research and Innovation Practice which outlines best practice to deliver research in an environmentally responsible way.
Of the universities who currently receive funding from us, all have sustainability policies and 75% have policies on sustainability in research. We encourage the remaining 25% to introduce research-specific sustainability plans and recommend all join LEAF (the Laboratory Efficiency Assessment Framework) – an international standard to improve the sustainability and efficiency of research labs.
Little is known about the impact of climate change on people with muscle wasting conditions, so we’re supporting research to change that. We’ve partnered with Prof Sisodiya from UCL to understand people’s real-world experiences. You can find out more here.
We take your privacy very seriously and are committed to protecting your personal information.
We are committed to safeguarding and promoting the welfare of children, young people, and adults at risk.