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Our Policies

Learn more about our policies across the organisation.

Pharmaceutical policy

To achieve our vision of a world without limits for people living with muscle wasting conditions, collaboration is essential. Companies in the pharmaceutical and life sciences sector play a vital role in advancing research, developing treatments and improving outcomes. By working together, we can help drive progress and make a meaningful difference for our community.

We follow a clear policy that guides how we work with the pharmaceutical and life sciences sector, ensuring every partnership supports people living with muscle wasting conditions and protects our independence. Partnerships can play a role in areas such as research, education, and support services, depending on what best meets the needs of our community.

Guiding principles

  • We only enter into partnerships that deliver meaningful benefit for people living with muscle wasting conditions. We do this where collaboration can offer direct support or clear long-term impact, and we actively seek opportunities where working together can make a positive difference.
  • We are transparent about all our partnerships. We publish information about our partnerships with the pharmaceutical and life sciences sector and follow a clear policy that sets out how we work with companies.
  • We protect our independence at all times. We never accept funding that could influence, or be perceived to influence, our priorities, positions, direction or decision making. To safeguard our independence, no more than 10% of our annual income will come from partnerships with pharmaceutical and life sciences companies.
  • We speak up when needed. We will challenge pharmaceutical and life sciences companies, and their actions or decisions, whenever they conflict with the interests of people affected by muscle wasting conditions, regardless of any current or past funding.
  • We work fairly and without favour. We do not prefer any individual company and therefore seek to work with multiple organisations wherever appropriate, ensuring that opportunities are considered on merit and in line with the needs of our community.
Sustainability policy

Climate change and environmental issues affect everyone, including our employees and the community we support.

People with muscle wasting conditions are likely to be disproportionately affected as more extreme weather can impact health, pain, fatigue, mobility, and medical supply chains.

Our sustainability policy outlines the steps we’re taking to reduce our environmental impact. If you have any questions, please get in touch with the sustainability working group here.

Key areas we’re focusing on

Transport

The charity’s employees work in a variety of different ways – based in the head office, full-time remote working, or a flexible mixture of both. We ask staff to adopt more carbon neutral forms of travel to work whenever possible to reduce their individual carbon footprint.

All employees (and volunteers where practical) are encouraged to reduce travel by switching to a hybrid model of meetings with in-person and virtual options available to staff and other meeting attendees. At least 50% of all trustee meetings are held virtually to reduce unnecessary travel.

All employees are also able to access the following travel schemes:

  • Cycle to work scheme
  • Travel card loan scheme
  • Octopus electric car scheme

The use of public transport is actively encouraged and if not available, car sharing with other employees is recommended when travelling to events. Staff are encouraged to avoid flying were possible, especially within mainland GB and northwest Europe.

Employees are asked to use our travel provider – Diversity Travel – when booking public transport and accommodation as they are an ethical transport provider and help us track our progress. They hold the Carbon Neutral Standard PA 2060 standard, the ISO 14001 Environmental standard and have 100% carbon neutral website hosting.

Privacy Policy

We take your privacy very seriously and are committed to protecting your personal information.

Safeguarding Policy

We are committed to safeguarding and promoting the welfare of children, young people, and adults at risk.

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