We greatly value cross-party support from parliamentarians across the UK. This is vital for improving neuromuscular services, faster access to treatments, and enabling people with muscle wasting and weakening conditions to live independently.
Our Parliamentary work
Skip to section
Our parliamentary work is crucial in shaping laws and policies that impact the lives of people with muscle wasting and weakening conditions. By engaging with politicians and policy makers across the UK, we campaign for laws and regulations that promote equality, accessibility, and improved healthcare.
Our work covers all four nations of the UK – England, Scotland, Wales, and Northern Ireland – and is vital in ensuring that our community’s needs are represented in all devolved parliaments.
Our work helps ensure the voices of those with muscle wasting and weakening conditions are heard and used to influence decisions that affect their day-to-day lives. This includes areas from healthcare and access to treatment, to welfare and employment.
By championing the voices and needs of our community, we strive to create a more inclusive and accessible society.
Read more about our previous work with All Party Parliamentary Groups (APPG) and Cross-Party Groups (CPG):
- Westminster APPG work into newborn screening
- Scottish Parliament’s CPG on Muscular Dystrophy’s latest meeting notes: Muscular Dystrophy | Scottish Parliament Website
- Senedd Cymru/Welsh Parliament’s CPG on Muscular Dystrophy’s latest meeting notes: Cross Party Group – Muscular Dystrophy and Neuromuscular Conditions – Cross Party Group