Raising awareness of myotonic dystrophy is critical because it is a rare, multi-systemic, progressive, inherited condition that affects successive family generations. It is often misdiagnosed and poorly supported, although in fact myotonic dystrophy is the most common form of adult muscular dystrophy. Currently there is no cure.
Our MDUK Muscles Matter 2021 seminars continued on Friday 17 September, virtually bringing together people living with muscle-wasting conditions from across the UK with a seminar on education.
Ways you can get involved
For over 50 years, we've been here for people living with muscle-wasting conditions. We couldn't do this without your help. Thank you.
Support for our work is more crucial than ever, so we've got lots of ideas about how you can help us fundraise.
Our brilliant volunteers help us deliver services, fundraise and raise awareness about muscle-wasting conditions.