Our Committees and Panels focus on specific tasks, provide detailed insights, and support the Board of Trustees to operate efficiently by leveraging specialist knowledge and dedicating time to governance and strategic issues.
Committees and Panels
The Joseph Patrick Trust
The Joseph Patrick Trust is our welfare fund. It provides grants that fund essential powered mobility equipment for people living with muscle weakening and wasting conditions. The management committee oversees the governance and administration of the fund. The panel reviews submissions against our eligibility criteria.
Joseph Patrick Trust Management Committee
Julian Pritchard (Chair)
Ian Gordon
Robert Warner
Joseph Patrick Trust Grants Panel
Robert Warner (Chair)
Karen Duckmanton
Jane Field
Jane Freebody
James Lee
Patricia Lock
Julian Pritchard
Kirsty Read
Finance Committee
Our Finance Committee oversees our financial health. It ensures our resources are used effectively to achieve our goals and mission.
Joseph Gordon (Chair)
Brigid Sutcliffe (Vice-Chair)
Helene Crutzen
Scott Keown
James Lee
Charles Scott
Appointments and Remuneration Committee
Our Appointments and Remuneration Committee oversees the recruitment, appointment, and remuneration of senior staff.
Professor Mike Hanna (Chair)
Ian Gordon
Charles Scott
Lord Sharkey
Brigid Sutcliffe
Medical Research Committee
The Medical Research Committee assesses research grant applications and makes funding recommendations. It also scrutinises ongoing projects. Committee members have professional experience in healthcare or scientific research.
Dr Gillian Butler-Browne, PhD (Chair)
Professor Tracey Willis, MB CHB MD MRCPI, PhD (Vice-Chair)
Dr Heidi Fuller, PhD
Professor Gráinne Gorman, MD, PhD
Professor Rita Horvath, MD, PhD
Dr Meredith James, PhD
Dr James Lilleker, MBChB, PhD
Professor Ketan Patel, PhD
Professor Linda Popplewell, PhD
Professor Frédéric Relaix, PhD
Professor Laurent Servais, MD, PhD
Professor Peter Zammit, PhD
Lay Research Panel
The Lay Research Panel is made up of people affected directly or indirectly by a muscle wasting condition. They do not need a scientific or healthcare background. The panel assesses research grant applications to ensure they are relevant to our strategy and people living with muscle wasting and weakening conditions.
Peter Ashley (Chair)
Alison Kay (Vice-Chair)
Graham Cloke
Richard Davenport
Graham Gornall
Alexa Gummow
Victoria Houghton
Corinthia Joseph
Modupe Joshua
Hannah Langford
William Love
Tammerin du Preeze
Roli Roberts (Scientific Advisor)
Andy Rose
Amber Tirimanna
David Towler
Services Development Committee
The Services Development Committee advises the Board of Trustees on neuromuscular care and healthcare policy. It consists of key stakeholders such as consultants, allied health professionals, and people living with muscle wasting and weakening conditions. The committee meets quarterly to discuss treatment access, service commissioning, staff training, mental health support, and the Rare Disease Framework.
Professor Deirdre Kelly (Chair)
Sheila Hawkins
Dr Chiara Marini-Bettolo
Professor Francesco Muntoni
Dr Jatin Pattni
Dr Ros Quinlivan
Lloyd Tingley
Carolyn Young
Tanvi Vyas
Scottish Council
The Scottish Council advises the charity and ensures we have the resources, knowledge and voice to support people living with muscle wasting and weakening conditions in Scotland.
Dr Sheonad Macfarlane BSc Med Sci, MB ChB (Chair)
Lindsey Armstrong
David Gale
Catherine Gillies
Elizabeth McHugh
Gerry McMenemy
Joe Moan
Jodie Murphy
Fiona Neale
Allyson Townhill
Jon Watkins
Northern Ireland Council
The Northern Ireland Council advises the charity and ensures we have the resources, knowledge and voice to support people living with muscle wasting and weakening conditions in Northern Ireland.
Claire O’Hanlon (Chair)
Claire Boylan (Secretary)
Volunteer Steering Group
The Volunteer Steering Group provides guidance and support to the organisation’s volunteer network.
Shiela Hawkins
Bryan Gould
Amanda Hayes
Oliver de Laszlo
Patricia Lock
Claire O’Hanlon
Andrew Robertson
Special Events Committees
Microscope Ball Committee
Our flagship gala dinner is held annually at the Hilton Park Lane in London with over 700 guests from the property sector.
Michelle Anthony (Chair)
David Allen
Matt Allen
Jack Beeby
Guy Bowring
Lucy Burns
Adam Cradick
Rhys Davies
Fraser Draycott
Harry Foster
Abigail Francis
Charles Howard
Scott Keown
Lizzie Knights
Jonny Lee
Louise Loannou
Tim Lumsdon
Ben Miller
Nick Moldon
Matt Nimmo
Rich Oliver
Stephen Rigby
Simon Tann
Mark Tatam
Trish Watson
Andrew Wedderspoon
Sports Quiz/Games Night Committee
The Sports Quiz/Games Night Committee helps our fundraising team organise games nights throughout the year, including our annual, star-studded quiz night hosted at Lord’s Cricket Ground.
Vanessa Van Blerk
Martin Cardoe
Rich Cumbers
Robert Driver
Louisa Hill
James Pearson
Ravi Seesurrun
Q Trust Committee
The Q Trust was established in 2001 by Mark Reynolds in honour of his friend Quentin Crewe. Mark’s dedication continued until 2005, when, sadly, he died from his own condition. His wife, Jemima, continued his legacy until she died in 2015. The Q Trust committee is now made up of the friends and family of Quentin, Mark and Jemima. The trust’s regular quizzes and dinners have raised millions for research into muscle wasting and weakening conditions.
Sophia Bergqvist
Candida Crewe
Victoria Elliston
Inez Gordon
Rebecca Jennings
Nicky Manby
Alex Wellesley Wesley
Charity Shoot Day Committee
The Charity Shoot Day Committee organise an annual clay pigeon shooting event at the Royal Berkshire Shooting School. It has raised thousands to transform the future of muscle wasting and weakening conditions.
Jon Eaglesham
Maria Gosende
Nick Moldon
Simon Tann