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Stories

Read real life stories from people in the muscle wasting and weakening community. Browse our blogs about a range of topics we think will interest you. 

STORIES FROM OUR COMMUNITY
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A man in a wheelchair on a football field
“Growing the OPMD community has helped me with my own condition progression” – celebrating OPMD awareness day
This oculopharyngeal muscular dystrophy (OPMD) awareness day, Bryan shares his journey living with OPMD, how over the years his involvement in the charity has grown along with the development of the OPMD group, and why awareness days for the rarer muscle wasting conditions are so important.
Read “Growing the OPMD community has helped me with my own condition progression” – celebrating OPMD awareness day
Women on a beach with sand stretching to the sea
“There are so many reasons why I love volunteering”
To celebrate Volunteers Week, our Presidents Awards Volunteer of the Year winner, Amanda Hayes, looks back at the volunteering opportunities she’s taken on over the years.
Read “There are so many reasons why I love volunteering”
A women wearing a pretty summer scarf sits in the sun
“I use my life experiences to support others in the community” – being a Peer Support Volunteer
Joan has been receiving support from us for over 40 years. To share the wealth of knowledge she’s gained about living with spinal muscular atrophy (SMA), she became a Peer Support Volunteer for the charity.
Read “I use my life experiences to support others in the community” – being a Peer Support Volunteer
An older man and woman looking at eachother lovingly. They are outside.
Long-standing volunteers to play key ‘race starter’ role in sell-out Bidwells Oxford 10k
Ian and Mavis Hale have a long history with Bidwells Oxford 10k. After volunteering nearly every year since its inception, this year, the couple will be the official race starters. Ian tells us how they first got involved.
Read Long-standing volunteers to play key ‘race starter’ role in sell-out Bidwells Oxford 10k
Six adukts and one child pose by Christmas trees holding two certificates.
‘Volunteering with MDUK has played such a valuable role in my life’
Claire Boylan, 39, shares why she has volunteered so passionately for MDUK – from campaigning at the Northern Ireland Executive to organising the annual Spirit of Christmas fundraising concerts.
Read ‘Volunteering with MDUK has played such a valuable role in my life’

SHARE YOUR STORY

Telling your story is a powerful and positive way of showing what it’s like to live with a muscle wasting or weakening condition, or to be a loved one of somebody who has a condition. Your story has the power to inspire and give hope to others and remind them that they are not alone.