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Stories

Read real life stories from people in the muscle wasting and weakening community. Browse our blogs about a range of topics we think will interest you. 

STORIES FROM OUR COMMUNITY
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Happy couple stand by open car boot with a table full of items to sell
“My family have been fundraising for Muscular Dystrophy UK for three generations”
Some of my earliest childhood memories involve fundraising for Muscular Dystrophy UK. From helping with jumble sales, running stalls at summer fairs, folding raffle tickets and gathering Christmas card orders, to watching my parents organise evening balls and events, the charity has always been part of my life.
Read “My family have been fundraising for Muscular Dystrophy UK for three generations”
Women on a beach with sand stretching to the sea
“There are so many reasons why I love volunteering”
To celebrate Volunteers Week, our Presidents Awards Volunteer of the Year winner, Amanda Hayes, looks back at the volunteering opportunities she’s taken on over the years.
Read “There are so many reasons why I love volunteering”
A man wearing headphones sits infront of a radio microphone and a computer
Bringing people together as a Muscle Group chair
Steve, who lives with Becker muscular dystrophy, has been our Southwest Muscle Group Chair for several years. As a lifelong supporter of our charity, he discusses what it’s like chairing one of our Muscle Groups, his love of volunteering and his campaigning journey.
Read Bringing people together as a Muscle Group chair
A women wearing a pretty summer scarf sits in the sun
“I use my life experiences to support others in the community” – being a Peer Support Volunteer
Joan has been receiving support from us for over 40 years. To share the wealth of knowledge she’s gained about living with spinal muscular atrophy (SMA), she became a Peer Support Volunteer for the charity.
Read “I use my life experiences to support others in the community” – being a Peer Support Volunteer

SHARE YOUR STORY

Telling your story is a powerful and positive way of showing what it’s like to live with a muscle wasting or weakening condition, or to be a loved one of somebody who has a condition. Your story has the power to inspire and give hope to others and remind them that they are not alone.