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Securing change

It’s essential that the new Government tackles the barriers and challenges our community face so everyone can get the healthcare, support and treatments needed to feel good, mentally and physically, and can live independently. 

We need your help to ensure that MPs and the new Government put people with muscle wasting and weakening conditions at the top of their agenda.   

Your voice matters

Tell your MP why our #MusclesMatter.

MPs are often best persuaded to take action after hearing the lived experiences of their constituents. Sharing your story is a powerful way to influence them.   

MPs can stand up for everyone with muscle wasting and weakening conditions in a number of ways, from joining our All Party Parliamentary Group, to asking questions in Parliament and holding the Government to account. 

By gaining the support of as many MPs as possible, we can change the future of muscle wasting conditions. 

Contact your MP

You can share your personal story or discuss key issues from our Manifesto for Muscles. Download and use our template letter or use it as inspiration to write your own. 

Share our manifesto

By sending MPs our Manifesto for Muscles, alongside your personal experience of muscle wasting and weakening conditions, you can encourage them to support the manifesto and take action. You can send it to them by email, post or via social media.

Tell us about your conversations

Have you managed to get your MP’s attention? Or met them in person? Let us know how it went using our quick to complete form.


General tips
  • Find out who your local MP is and get in touch easily through the website WriteToThem 
  • Share your personal story! Talking about your personal experience with muscle wasting and weakening conditions is incredibly powerful. 
  • Attend any face-to-face meetings if you are able to. Physically meeting with MPs makes a big difference to how much they remember about your requested actions. 
  • Don’t forget, collaborating with others locally when campaigning is more effective than doing it alone, and it’s also less daunting. Together we are stronger. 
  • Keep us updated. We want to hear about everything you’re doing to engage with MPs and what you’ve heard back. Pictures, emails, letters. Everything! 
Tips for writing to MPs
  • Use our template letter as a starting point to congratulate your new MP.  
  • Keep any written correspondence with MPs short so they’re not reading pages of a letter when they’re busy setting up a new office.
  • Let MPs know you’re a constituent. In emails or letters, always remember to include your name and address.
  • Save any correspondence you receive back so you can follow up on actions they promised. 


Tips for engaging on social media 
  • Social media is one of the quickest and most direct ways of engaging with MPs 
  • Tag your local MP and start a conversation to raise awareness forof muscle wasting and weakening conditions 
  • If you don’t want to write anything new, you can use our template below or reshare our social media posts – whatever works best for you! Find us: 
  • @MDUK_News on X (formerly Twitter)  
  • @musculardystrophyuk on all other channels! 

Example tweet:  

Hi @MP. Now that you’ve been elected, what do you plan to do to support and champion the voices of people with muscle wasting and weakening conditions in the new Parliament? 

Tips for meeting with MPs 
  • If arranging the meeting yourself, you could offer to meet face to face or hold a meeting virtually. 
  • Think about the issues you want to talk about in advance. Check out our manifesto for muscles for inspiration. 
  • There is always time for questions so having a few ideas ready helps put your thoughts and words into shape ready for when you meet.  
  • Take pictures! Make sure you get consent from everyone in the photo before you share them. Feel free to share any pictures with us, or tag us on social media 
  • Make a note of any relevant quotes or points your MP makes so you can hold them to account in the future. 

Stay Involved

We will soon be launching a new campaigners network. Send us an email to learn more about future campaigning opportunities. 

Manifesto for Muscles

We’re calling on the Government to deliver five key priorities for our community.

1. Improve access to NHS services and treatments.

2. Ensure people affected by muscle wasting and weakening conditions can feel financially secure.

3. Ensure people living with a muscle wasting and weakening condition can get a timely diagnosis.

4. Increase knowledge of muscle wasting and weakening conditions among non-neuromuscular specialist healthcare professionals.

5. Maintain the UK’s position as a world leading centre for research excellence.

Have any questions?

If you have any questions or need support when contacting your MP, please do reach out.