Securing change

You can share your personal story or discuss key issues from our Manifesto for Muscles. Download and use our template letter or use it as inspiration to write your own. 

By sending MPs our Manifesto for Muscles, alongside your personal experience of muscle wasting and weakening conditions, you can encourage them to support the manifesto and take action. You can send it to them by email, post or via social media.

• Find out who your local MP is and get in touch easily through the website WriteToThem 
• Share your personal story! Talking about your personal experience with muscle wasting and weakening conditions is incredibly powerful. 
• Attend any face-to-face meetings if you are able to. Physically meeting with MPs makes a big difference to how much they remember about your requested actions. 
• Don’t forget, collaborating with others locally when campaigning is more effective than doing it alone, and it’s also less daunting. Together we are stronger. 
• Keep us updated. We want to hear about everything you’re doing to engage with MPs and what you’ve heard back. Pictures, emails, letters. Everything! 

• Use our template letter as a starting point to congratulate your new MP.  
• Keep any written correspondence with MPs short so they’re not reading pages of a letter when they’re busy setting up a new office.
• Let MPs know you’re a constituent. In emails or letters, always remember to include your name and address.
• Save any correspondence you receive back so you can follow up on actions they promised. 

• Social media is one of the quickest and most direct ways of engaging with MPs 
• Tag your local MP and start a conversation to raise awareness forof muscle wasting and weakening conditions 
• If you don’t want to write anything new, you can use our template below or reshare our social media posts – whatever works best for you! Find us: 
• @MDUK_News on X (formerly Twitter)  
• @musculardystrophyuk on all other channels! 

Example tweet:  

Hi @MP. Now that you’ve been elected, what do you plan to do to support and champion the voices of people with muscle wasting and weakening conditions in the new Parliament? 

• If arranging the meeting yourself, you could offer to meet face to face or hold a meeting virtually. 
• Think about the issues you want to talk about in advance. Check out our manifesto for muscles for inspiration. 
• There is always time for questions so having a few ideas ready helps put your thoughts and words into shape ready for when you meet.  
• Take pictures! Make sure you get consent from everyone in the photo before you share them. Feel free to share any pictures with us, or tag us on social media 
• Make a note of any relevant quotes or points your MP makes so you can hold them to account in the future.