Since July 2022, most Neuromuscular services have been commissioned (or funded) by Integrated Care Systems (ICSs). With this change, we hope that people living with a muscle-wasting condition will be able to access better integrated care given the wide variety of service need to bring positive progress in the management of muscle-wasting conditions.
Given the complexity of muscle-wasting conditions, Muscular Dystrophy UK is working closely with our Neuromuscular Networks to engage with ICS leads to support best practice case for people living with a muscle-wasting condition in their local area.
To provide commissioners with an outline on what these changes will mean for people with muscle-wasting conditions, in September 2022, we published our report ‘The new integrated care model and muscle-wasting conditions: How Integrated Care Systems can implement best-practice’ to support those involved in the commissioning of services such as Integrated Care System (ICS) commissioners, Integrated Care Board (ICB) members, primary care networks, and NHS England (NHSE).
Further, in October 2022, we published our report ‘The new integrated care model and muscle-wasting conditions: Supporting community healthcare professionals to care for people living with muscle-wasting conditions’ to outline how MDUK can support ICSs, community and specialist healthcare professionals to provide best-practice neuromuscular care.