Adam, Cerys, Freddie and George Booth live in Weston, Stafford. George aged 5 was diagnosed with Becker muscular dystrophy in January 2017. They set up A Cure for George to raise awareness and fund research into Becker muscular dystrophy.
George like many other children his age, enjoys riding his bike, swimming, football, playing games on his computer, reading and watching TV.
When George was just two years old he started getting muscle spasms in his calves and started to walk on his tip toes. As time went on the spasms become more frequent and painful, this spread to his thighs. At times the spasms could last up to an hour, when they were bad he couldn’t put his heels down, stand or walk properly. George would be crying in pain. At this point Adam and Cerys took George to the GP. The GP agreed the spasms were not typical, that his calves were very large and his muscles and tendons were very tight. Their GP referred George to an orthopaedic team. They quickly ruled out anything orthopaedic and referred George to the muscle team at Oswestry Hospital.
At the initial consultant appointment George was examined and his muscle strength was tested. The consultant took a full history of events and George had some blood tests. The consultant made a follow up
appointment for four months’ time and gave George some physio stretches to do every day to help stretch his tight muscles. Adam and Cerys received a call six weeks later to bring the appointment forward and on the 6 January 2017 their worst fears were confirmed, when the consultant diagnosed George with Becker muscular dystrophy. The diagnosis was based on George’s DNA test.
Cerys said: “This news has completely turned our lives upside down and devastated us. “
Since the diagnoses George has regular Calpol for his spasms and does his physio stretches twice a day with mum and dad. He has a warm bath each night followed by massage and he has also been having weekly traditional Chinese acupuncture sessions, all of which give George some therapeutic relief.
Over the next 12 months Adam and Cerys have a lot planned, they are aiming to raise £10,000 within the first year. To start with they are planning a raffle, 110 mile bike ride, a Go Orange day with a delicious cake sale and school disco. Also in the pipe line are charity chocolates, a sponsored swim for the children, charity football match and a golf day.
How you can help
Support George by donating on his JustGiving page
Muscular Dystrophy UK has been supporting families affected by Becker muscular dystrophy since 1959 funding research to find a treatment for this condition. With your help we can continue to fund research which could improve the lives of individuals living with Becker muscular dystrophy.
Setting up a family fund, like A Cure for George, is a great way to fundraise for Muscular Dystrophy UK to keep our vital research moving forward. Find out more about our Family Funds.