Emily and Anthony Garbutt have set up Abbie Can Family Fund for their daughter, Abbie, who was diagnosed with Facioscapulohumeral muscular dystrophy in September 2018 at the age of 7.

Abbie has trouble using her facial muscles, lifting her arms above her head and has winged scapula. Abbie has a very positive attitude and won’t let a diagnosis define her.

Emily, Abbie’s mum said:

“As much as we were shattered and devastated by Abbie’s diagnosis we just want to do everything we can to help beat this condition for her and all the others affected FSHD.”

Since finding out about her condition, Abbie has focussed even more on who she aims to be when she is older.

Anthony, Abbie’s step-dad explained how she is using her diagnosis to define who she will be in the most positive of ways:

“Abbie has always wanted to be a doctor for as long as we can remember and now she wants to be able to fund research into FSHD. She now hopes to become a doctor in the FSHD field so she can tell other children that they don’t need to worry about their diagnosis.”

Abbie has set out to fund 100 hours of research into FSHD through her Family Fund and has already decided on ways to start the clock.

Abbie, along with her older brother Jake (10) and cousin Emma, will be in free-fall as they brave an indoor sky dive challenge this November.

The family are also excited to take part in Muscular Dystrophy UK’s Bake a Difference week and Go Orange for a Day. And plans are being prepared for family and friends take on the Yorkshire 3 Peaks and Peddle Paddle Peak challenges next summer.

 

How you can help:

To help Abbie Can fund more hours of FSHD research: visit their JustGiving campaign and consider a donation

Follow Abbie, Jake and Emma and leap for your own indoor or outdoor sky dive challenge

Register to take part in Go Orange for a Day 2019 and put on your sunnies for Abbie Can Family Fund.

Setting up a family fund like Alexandra’s Family Fund for FSHD is a great way to fundraise for Muscular Dystrophy UK to keep our vital research moving forward. Find out more about our family funds.

Keep in touch
X
- Enter Your Location -
- or -