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Support Group Chair

Our Muscle Groups and support groups bring together those living with muscle wasting conditions. They’re a chance to share key information and advice, join forces on campaigning and importantly, to socialise! Our chairs are friendly community leaders who lead meetings and shape the agenda of each session.

Position Support Group Chair

Our Muscle Groups and other support groups reach people throughout the UK. We believe it’s important that these groups are shaped by people with lived experience of neuromuscular conditions. As well as leading meetings, our Support Group chairs give their input to the agenda, speakers and organisation of meetings. 

Our Muscle Groups are open to people living with any muscle wasting condition, as well as their family, friends and carers. Our other support groups tend to be more specialised, for example for people living with a particular condition or for people in a particular age group. 

Why volunteer?
You’ll get the opportunity become a community leader, develop organisation and public speaking skills through leading a warm and friendly group, and meet lots of great like-minded people.

As Support Group Chair, you will:

  • Chair group meetings and shape each meeting’s agenda in discussion with our staff.
  • Support our staff to publicise group meetings though local connections, encouraging new people to attend.
  • Work with our staff to attract a range of speakers for meetings.

This role could involve chairing an existing group or working with us to set up a new group. 

Time Commitment
We usually have 3 meetings per year in each Muscle Group region. For other support groups, number of meetings per year is flexible.

What we’re looking for in a Support Group Chair
You’ll be a strong communicator, a good listener, reliable and organised. You’ll have a broad understanding of muscle wasting conditions and the work of Muscular Dystrophy UK and you’ll be able to run meetings in a positive and professional manner. 

Please note, we are recruiting Muscle Group chairs in the following regions: 

  • Hampshire, Dorset and Isle of Wight
  • East of England (Cambridgeshire, Norfolk, Suffolk, Essex)
  • North East 
  • London
  • Northern Ireland
  • Scotland

If you’d like to find out more about muscle groups or explore the possibility of setting up a new support group, please email our Volunteering team

Volunteer (General)

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Stay connected with our community
We will never share your details with anyone. We will only contact you in the ways that you wish, making use of the information you’ve told us (including your muscle-wasting condition) and publicly available information. We want to make sure what we communicate with you is relevant to your interests. Our privacy policy is available on our website or by phoning 0300 012 0172.

Why volunteer?

Connect with others

Our volunteers have the opportunity to meet and engage with the muscle wasting community. Meet people who share similar experiences.

Make a difference

Our volunteers are making a tangible difference. Together we are changing the future of people with muscle wasting and weakening conditions.

Learn new skills

Our volunteers learn and develop their skills. Communication, empathy and problem solving.

Personal fulfillment

Our volunteers often experience a sense of accomplishment and pride knowing they are contributing to groundbreaking research and life-changing support.