We have worked alongside a range of specialist health professionals to develop a care plan that can be completed by yourself and your neuromuscular clinicians.
Care plan
You can download the care plan as a PDF. If you’d like, you can print it at home or fill it in digitally.
This care plan can be shown to any health professional and helps them to give a tailored approach to your healthcare.
The care plan is designed to be filled in by a person with a muscle wasting condition and the various health professionals you see. This may include a consultant neurologist, neuromuscular care advisor, occupational therapist, physiotherapist as well as cardiac and respiratory specialists.
The care plan includes important information including:
- background information on you and your daily routines
- contact details of your consultants, care advisors and GP
- details about your neuromuscular condition
- the medicines you use
- cardiac, respiratory and anaesthetic management (where appropriate)
We’re here to support you
Webinars, Information Days, and support groups for our muscle wasting community. Our life-changing support is here for you.
Advice for living with or caring for someone with a muscle wasting condition.