Amanda Hayes, a longstanding MDUK volunteer who has Myasthenia Gravis, founded and chairs the group. With over 60 different conditions under the umbrella of ‘muscle-wasting conditions’, it can be hard to find someone with the same condition to talk to and share experiences with.
Thanks to the support group, Amanda and others with Myasthenia Gravis meet every few months on Zoom, with the group’s next meeting scheduled for January 2024 . Register here:
Please email Calley Clay on c.clay@musculardystrophyuk.org to sign up to attend future meetings.