The schoolboy lives with Duchenne muscular dystrophy, a condition which causes his muscles to weaken and waste over time which means that, while in the classroom, Amir spends most of his time in a specially-adapted school-chair.
Amir’s one-to-one teacher Chelsea Burgess has been astonished at how the once-shy boy has taken to cooking, baking hundreds of cupcakes, cookies and cornflake tarts to fundraise for Muscular Dystrophy UK, because he wants to help other children like himself.
Chelsea said:
Although every day is a challenge for Amir, he amazes us with the hard work he puts into everything he does. After lockdown his mobility decreased but this doesn’t stop him. Every day he gives himself daily targets on how many times he will walk down the corridor. He never gives up.
Amir was diagnosed when he was two. Born prematurely at 29 weeks, his family first considered his slow development – he walked late – as the result of his early arrival.
Finally a doctor spotted symptoms and referred the family to Great Ormond Street where the diagnosis was made.
Amir’s love for cooking originally started as an activity to boost his confidence in school. But now he has set himself the target of raising £700 for MDUK.
Ayesha, also mum to four-year-old Aleena and two-year-old Aneesa, is full of praise for the way the school supports her family.
During lockdown a teacher called to see us every week. However, the isolation from the routine and classmates was very hard.
She said Amir’s social skills, reading. hand-writing and maths have improved dramatically since the first lockdown measures were eased and Amir was told he could return to school.
We’ve continued sending Amir to school in the second lockdown after discussing his vulnerability to the virus with a doctor. He really loves his school and we are so pleased to see how well he is doing.
Louise, Moffat, London’s Regional Development Manager for Muscular Dystrophy UK said:
It is lovely to hear of such a fantastic little fundraiser and I want to congratulate Amir on achieving so much. It is truly inspiring for our community to read of his achievements.
Amir’s JustGiving page can be accessed here https://www.musculardystrophyuk.org/bake-a-difference/
For more information about our Bake A Difference fundraiser please look here