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Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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Kilimanjaro mountain
Taking on Mount Kilimanjaro in grandma’s memory
I grew up seeing the affect muscular dystrophy had on my grandma and my whole family as she…
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News
Gabby logan stands at the front of a room of people. The screen behind reads "President's Awards. Recognising remarkable people"
Our President’s Awards
The ceremony hosted by our President, Gabby Logan MBE, took place on Monday 19 February, at the…
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Blog
John Foxwell, a man with Pompe disease, stands in front of his house.
Turning a diagnosis into a purpose: John Foxwell
All through life I struggled with everyday things and couldn’t understand why. I couldn’t do sit…
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Blog
A photo of Professor Linda Popplewell, a research scientist who works on Muscular Dystrophy and rare diseases.
Recognising scientist Linda Popplewell on International Day of Women and Girls in Science
A career in science and muscular dystrophy I’ve always had a brain for science as opposed to…
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News update
Government fails to act on their 2022 commitment to increase financial support through the Disabled Facilities Grant
Today the BBC have highlighted that just after announcing the Disability Action Plan, the…
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News update
Understanding your views of vamorolone, a treatment for Duchenne muscular dystrophy currently being appraised by NICE
We are supporting this process as one of two ‘Patient Experts’, and our Director of Care, Campaigns…
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News Update writing on an orange background
The European Medicines Agency confirms recommendation for non-renewal of authorisation in the EU of Duchenne muscular dystrophy medicine Translarna
In September 2023 we shared news that the European Medicine Agency’s (EMA) human medicines…
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News
Dr Kate Adcock, Professor Laurent Servais, Dame Kay Davies and Professor Matthew Wood
Changing the landscape for clinical trials in the UK - celebrating the fifth anniversary of the MDUK Oxford Neuromuscular Centre
In January 2019, we partnered with the University of Oxford to form the MDUK Oxford Neuromuscular…
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News Update writing on an orange background
Sarepta Therapeutics announce start of clinical trial for LGMD2E/R4
Limb girdle muscular dystrophy 2E/R4, also known as beta sarcoglyanopathy, is a progressive genetic…
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News
centre winners
Recognising outstanding neuromuscular centres across the UK
We’re delighted to announce 24 neuromuscular centres across the UK are the recipients of our…
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