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We were pleased to have so many of our Northern Ireland community attend and hearing all the…
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On the day, the weigh-in was followed with a video briefing, which made it all look so easy.
Next…
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In July 2021, we published the 'Shining a Light: the impact of COVID-19 and the future of care for…
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Just as 12-year-old me wished I could have a “cool” name like Jessica or Brittany, I wished I had a…
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Led by Public Policy Projects and Genetic Alliance UK, the Rare Disease Coalition held four…
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David Howard, who has facioscapulohumeral muscular dystrophy (FSHD), is excited to be taking on the…
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I am pleased to announce that the Journal for Neuromuscular Disorders has accepted for publication…
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My name is Dominic Doran. I am 23-years-old. In July 2020 I graduated from Royal Holloway…
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They visited the UK’s four neuromuscular centres and have raised an incredible £34,000, so far! One…
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After Sammy de Laszlo was diagnosed with Duchenne muscular dystrophy in 2012, parents Oliver and…