Skip to content

MDUK Muscles Matter 2022 – Monday 21 March round-up

28 March 2022

Our MDUK Muscles Matter 2022 continued on Monday 21 March, virtually bringing together people living with muscle-wasting conditions from across the UK with a seminar on housing adaptations.

We were joined by Occupational Therapists Colin Jones and Bea Moon, parent Gerry McMenemy and Jackie Munro MDUK’s Regional Advocacy, Information & Support manager for Scotland.  

The panellists spoke about their experience of the housing and adaptations process. Colin and Bea drew upon their experience as senior Occupational Therapists to discuss what support occupational therapy can provide for individuals and families affected by muscle-wasting conditions. Jackie elaborated on the support MDUK can also offer in accessing these services and navigating funding.  

Gerry shared his personal experience of the housing adaptation process following his son Somhairle’s diagnosis of Duchenne muscular dystrophy in 2017 at the age of 3 ½. He describes the experience as “a crash course in everything from project management, discovering funding, working with good Occupational Therapists, negotiating with local authorities and finding a good builder.”  

Following the panellist’s experience there was a discussion with questions from the attendees. All the panellists provided useful insights into matters such as challenging funding or therapy decisions and considerations for including children in the adaptation process.  

You can watch the full recording of the housing seminar above or on our YouTube channel.  

For further information on the housing adaptation process and to request one of our housing adaptations manuals, please visit this webpage

Thank you to our sponsors 

Keep an eye on our social media channels (FacebookInstagramTwitter and Linked In) for announcements concerning future Muscles Matter seminars. 

Visit our YouTube channel to watch seminars from the past two years. Including condition-specific sessions, practical sessions such as financial support and psychological care to help you live well, and seminars looking into ways you can manage your condition. 

Join the Muscular Dystrophy UK community

Share your experience and find advice from others with similar conditions.