Stories

With roads round Newcastle-Upon-Tyne safe and silent, 38-year old Rebecca Leary’s 260-mile charity bike ride has become incredibly enjoyable.

Two Scottish men, both living with muscle wasting conditions, have challenged themselves with serious 2.6 Challenges, to fundraise for MDUK.

 
Keeley Scott, 11, who lost her grandmother to fascioscapulohumeral muscular dystrophy (FSHD) and whose aunt, Alannah, lives with the same condition, has supported Muscular D

Adam Smith, who has a fantastic running history, will run about 437 laps of his garden path and driveway, on 26 April, wearing his stand-out orange gnome hat.

Gayle Hoy, 42, was disappointed when she heard that all three of the marathons she had been training for since last November had been postponed, threatening the £10k she was deter

 
Carmela Chillery-Watson, who has the very rare muscle-wasting condition LMNA-CMD, will celebrate her sixth birthday on Friday (27 March) without her friends.

Due to the Coronavirus pandemic, Concetta De Martino’s work at Castle School for children with special needs in Cambridge is on hold and for now she can’t take her two grandson

Artist Paul Jorden, who has mitochondrial myopathy, has had over 500 requests for prints of a picture he painted from his hospital bed.

Peter Ashley lives in North Lincolnshire with his wife, Emma-Jayne, and three children.

Last year, the first treatment for spinal muscular atrophy (SMA), Spinraza, was approved for use in England through a Managed Access Agreement.