Clinical trial coordinators play an important role in the successful running of clinical trials.
When one of your children is diagnosed with an incurable muscle-wasting condition, it can have a devastating effect on your whole family.
Teddy Rooks, 24, from Romford, is taking on the Prudential RideLondon-Surrey 100 next summer for Muscular Dystrophy UK as part of the family fund, Moving Muscles for Marcus.
A fundraiser with Becker muscular dystrophy has spent the month ziplining, canoeing and biking to raise money to help children with muscle-wasting conditions.
Hayley Lloyd says making friends with someone who has the same condition as her son has given him a “role model” to look up to.
Amy Cameron’s son Zac, three, was diagnosed with SMA Type 1 in November 2016.
Mitch Coles has blogged about having Duchenne muscular dystrophy and bringing up one baby – now he tells us what it’s like when you have two!
Mitch, 26, and his partner
Four-year old Carmela became a superhero for the day with help from a very special sidekick – comedian Adam Hills.
In just over a week, Sooz Gilson from Ross-on-Wye will be taking part in RideLondon, cycling a mammoth 100 miles all in aid of Muscular Dystrophy UK.
Tony Caruso, 33 from Royston, Hertfordshire, will be taking on the Prudential RideLondon-Surrey 100 for the second time this July in aid of Muscular Dystrophy UK.
Today is FSHD Awareness Day – find out more about the day and the condition here.