Carmela’s in self-isolation – while her dad delivers coronavirus test kits
Carmela Chillery-Watson, who has the very rare muscle-wasting condition LMNA-CMD, will celebrate her sixth birthday on Friday (27 March) without her friends.
Cambridge grandmother won’t let Coronavirus stop her running for Muscular Dystrophy UK
Pic credit: SussexSportPhotography.
Art to Heart
Artist Paul Jorden, who has mitochondrial myopathy, has had over 500 requests for prints of a picture he painted from his hospital bed.
“I can have a positive impact”
Peter Ashley lives in North Lincolnshire with his wife, Emma-Jayne, and three children.
Spinraza: one family’s story
Last year, the first treatment for spinal muscular atrophy (SMA), Spinraza, was approved for use in England through a Managed Access Agreement.
Supporting you to get the benefits you need
Financial support is crucial when you’re living with a muscle-wasting condition, but many people aren’t receiving the benefits they are entitled to and can struggle.
Peer support can change lives
Liz Williams is an active and passionate advocate for people with Facioscapulohumeral muscular dystrophy (FSHD).
Teaching assistant completes his support for a boy with muscular dystrophy with the Great North Run
Tom Miller, 42, met Oliver Gummow, 10, who has congenital muscular dystrophy, when Oliver started school in 2013.
Grangemouth firm jumps in at the deep end to support Muscular Dystrophy UK
The Hot Tub SuperCentre has been supporting MDUK by supplying use of their tubs for anyone with a muscle-wasting condition.
Ian Wikeley takes on a year-long challenge in memory of his brother
Ian Wikeley sadly lost his brother Jonathan in 2015 to Duchenne muscular dystrophy at the age of just 25.
High Flying Burds
The ‘high flying burds’, who have all worked in Stirling Police office, are conquering their fears and planning a 10,000 ft jump from a plane in aid of Somhairle McMen