Louise Halling, her husband, Mark and their seven-year-old son, Jacob, live in West Berkshire. Jacob was born in Australia, where the family lived for several years.
Hayley Lloyd is a single mum living in Warwickshire with her 13-year-old son, Tommy, who has limb girdle muscular dystrophy, LGMD2E.
Name: Vivek Gohil
I live with a degenerative muscle wasting condition called Duchenne muscular dystrophy (DMD). I’ve been a wheelchair user since the age of nine.
Joe Logue lives in rural Renfrewshire, surrounded by countryside, fields and farms. He lives with his wife Tracy and their seven-year-old daughter, Winter.
Carrie Aimes, 30, from Worcestershire, has the condition Ullrich congenital muscular dystrophy, and is a full-time wheelchair-user.
Nine-year-old Mia Widd has zip-wired, donned fancy dress, and handed out leaflets to raise money for Muscular Dystrophy UK.
“So here I am. 32 years old and IT is ‘in full swing’ as they say and continuing to develop.
Gerry and Jenny met in their early 20s. He was an engineer, she worked in retail. They fell in love and got married, with dreams of starting a family.
In our commitment to giving patients a voice in drug development, Muscular Dystrophy UK is working with pharmaceutical companies, academics, patients, healthy technology assessment
Genome editing is considered to have great potential for treating numerous health conditions, including muscle-wasting conditions.
My name is Neeru Malhotra and I’m the Head of Information and Support Services at Muscular Dystrophy UK. My brother has Duchenne muscular dystrophy.