Carmela Chillery-Watson, who has the very rare muscle-wasting condition LMNA-CMD, will celebrate her sixth birthday on Friday (27 March) without her friends.
Pic credit: SussexSportPhotography.
Artist Paul Jorden, who has mitochondrial myopathy, has had over 500 requests for prints of a picture he painted from his hospital bed.
Peter Ashley lives in North Lincolnshire with his wife, Emma-Jayne, and three children.
Last year, the first treatment for spinal muscular atrophy (SMA), Spinraza, was approved for use in England through a Managed Access Agreement.
Financial support is crucial when you’re living with a muscle-wasting condition, but many people aren’t receiving the benefits they are entitled to and can struggle.
Liz Williams is an active and passionate advocate for people with Facioscapulohumeral muscular dystrophy (FSHD).
Tom Miller, 42, met Oliver Gummow, 10, who has congenital muscular dystrophy, when Oliver started school in 2013.
The Hot Tub SuperCentre has been supporting MDUK by supplying use of their tubs for anyone with a muscle-wasting condition.
Ian Wikeley sadly lost his brother Jonathan in 2015 to Duchenne muscular dystrophy at the age of just 25.
The ‘high flying burds’, who have all worked in Stirling Police office, are conquering their fears and planning a 10,000 ft jump from a plane in aid of Somhairle McMen