Our Q&A session with a neuromuscular clinical trial coordinator
Clinical trial coordinators play an important role in the successful running of clinical trials.
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I wish I could say we’re coping as a family…
When one of your children is diagnosed with an incurable muscle-wasting condition, it can have a devastating effect on your whole family.
Teddy Rooks is Moving Muscles for Marcus at the Prudential RideLondon-Surrey 100 next summer
Teddy Rooks, 24, from Romford, is taking on the Prudential RideLondon-Surrey 100 next summer for Muscular Dystrophy UK as part of the family fund, Moving Muscles for Marcus.
Rich Copson’s month of adventure activities
A fundraiser with Becker muscular dystrophy has spent the month ziplining, canoeing and biking to raise money to help children with muscle-wasting conditions.
‘It’s great to have someone to go to’ Hayley Lloyd on peer support
Hayley Lloyd says making friends with someone who has the same condition as her son has given him a “role model” to look up to.
‘While it’s not a cure, it’s buying us valuable time’ The fight for access to Spinraza
Amy Cameron’s son Zac, three, was diagnosed with SMA Type 1 in November 2016.
‘Having kids – and a normal life – is possible when you have Duchenne’
Mitch Coles has blogged about having Duchenne muscular dystrophy and bringing up one baby – now he tells us what it’s like when you have two!
Mitch, 26, and his partner
Superhero Carmela enlists comic Adam Hills as sidekick
Four-year old Carmela became a superhero for the day with help from a very special sidekick – comedian Adam Hills.
Sooz Gilson is cycling an incredible 100 miles for Muscular Dystrophy UK
In just over a week, Sooz Gilson from Ross-on-Wye will be taking part in RideLondon, cycling a mammoth 100 miles all in aid of Muscular Dystrophy UK.
Tony Caruso is taking on RideLondon for the second time
Tony Caruso, 33 from Royston, Hertfordshire, will be taking on the Prudential RideLondon-Surrey 100 for the second time this July in aid of Muscular Dystrophy UK.
Travelling to America in a wheelchair: Ann Blake on accessibility
Today is FSHD Awareness Day – find out more about the day and the condition here.