The Black Knight Skydive: jumping for Harry
We sat down with Debbie Vaughan, mum to Harry who lives with a very rare type of congenital muscular dystrophy, about the Black Knight skydive taking place in September.
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Skydive for MDUK: One less on the bucket list
We chatted with Shelley Waite who decided to face her fears and do a skydive to raise money for MDUK, and having done it she says the feeling will stay with her forever.
Volunteers Week: Tireless Tyrone fundraiser is awarded an MBE
Tireless Tyrone volunteer Claire O’Hanlon hasn’t stopped fundraising for Duchenne charities since her son Luke was diagnosed with the condition, aged 13 months, in 2012 and
Volunteers Week: Peer support
Having been diagnosed with a muscle-wasting condition and attending MDUK events, Patricia knew the value of her experience when sharing her story.
Volunteers Week: Valuing the patient’s perspective
We’re committed to funding the best and most relevant science for the people we support, so we have a ‘gold standard’ review and selection process.
An ever-changing process of grief and loss
Louise Halling, her husband, Mark and their seven-year-old son, Jacob, live in West Berkshire. Jacob was born in Australia, where the family lived for several years.
I try to keep positive and live for the present
Hayley Lloyd is a single mum living in Warwickshire with her 13-year-old son, Tommy, who has limb girdle muscular dystrophy, LGMD2E.
Technology is integral for my survival
Name: Vivek Gohil
Age: 28
I live with a degenerative muscle wasting condition called Duchenne muscular dystrophy (DMD). I’ve been a wheelchair user since the age of nine.
Even the strongest among us need help sometimes
Joe Logue lives in rural Renfrewshire, surrounded by countryside, fields and farms. He lives with his wife Tracy and their seven-year-old daughter, Winter.
Volunteers Week: Making strong friendships by volunteering for MDUK
After running the London Marathon for Muscular Dystrophy UK in 2018 Sam Tisbury, who lives in Essex, wanted to do even more for the charity.
Carrie Aimes on Changing Places
Carrie Aimes, 30, from Worcestershire, has the condition Ullrich congenital muscular dystrophy, and is a full-time wheelchair-user.