We sat down with Debbie Vaughan, mum to Harry who lives with a very rare type of congenital muscular dystrophy, about the Black Knight skydive taking place in September.
We chatted with Shelley Waite who decided to face her fears and do a skydive to raise money for MDUK, and having done it she says the feeling will stay with her forever.
Tireless Tyrone volunteer Claire O’Hanlon hasn’t stopped fundraising for Duchenne charities since her son Luke was diagnosed with the condition, aged 13 months, in 2012 and
Having been diagnosed with a muscle-wasting condition and attending MDUK events, Patricia knew the value of her experience when sharing her story.
We’re committed to funding the best and most relevant science for the people we support, so we have a ‘gold standard’ review and selection process.
Louise Halling, her husband, Mark and their seven-year-old son, Jacob, live in West Berkshire. Jacob was born in Australia, where the family lived for several years.
Hayley Lloyd is a single mum living in Warwickshire with her 13-year-old son, Tommy, who has limb girdle muscular dystrophy, LGMD2E.
Name: Vivek Gohil
I live with a degenerative muscle wasting condition called Duchenne muscular dystrophy (DMD). I’ve been a wheelchair user since the age of nine.
Joe Logue lives in rural Renfrewshire, surrounded by countryside, fields and farms. He lives with his wife Tracy and their seven-year-old daughter, Winter.
After running the London Marathon for Muscular Dystrophy UK in 2018 Sam Tisbury, who lives in Essex, wanted to do even more for the charity.
Carrie Aimes, 30, from Worcestershire, has the condition Ullrich congenital muscular dystrophy, and is a full-time wheelchair-user.