Claire O’Hanlon, MBE, who chairs Muscular Dystrophy UK’s Northern Irish Council, has clambered over three Irish peaks in just three weeks, often carrying nine year- old Luke, a
Trailblazers has been important to me ever since I discovered them during that dark chapter of my life.
On 31 December 2015, molecular biologists were having a different kind of party; while the rest of the world was ‘seeing in’ 2016, they were celebrating the biggest breakthroug
Jayne Hatchard lives in Southwick (near Brighton), with her three-year-old son, Tyler, who has Duchenne muscular dystrophy.
Michelle Cook lives in Tonbridge, Kent, with her husband, Jonathan, and two children, Jake, 14, and Cerys, 12.
Michelle Goldthrite, 47 lives with her husband Joel and their two daughters Sadie, 13, and Abigail, 11 in West Glamorgan.
Kiera Santry, 20, from Camden, London, has limb girdle muscular dystrophy.
Fifty-year-old Amanda Hayes, lives in Northumberland Heath, Kent, with her husband Andrew, and cat, Bubba. Twenty four years ago, Amanda was diagnosed with myasthenia gravis.
Sejal and Manoj Thakrar live in Stanmore, Middlesex, with their four-year-old son Shiv, who has Duchenne Muscular Dystrophy.
Sixty-eight-year-old Val Foreman from Tylers Green, Buckinghamshire has inclusion body myositis (IBM).
In 2014 we launched our neuromuscular Support Hub.