Claire O’Hanlon, MBE, who chairs Muscular Dystrophy UK’s Northern Irish Council, has clambered over three Irish peaks in just three weeks, often carrying nine year- old Luke, a
Dr Mark Hamilton is a Speciality Registrar in Clinical Genetics who is leading a new clinical research study funded by Muscular Dustrophy UK in the West of Scotland based on
Forty-one-year-old Jon Powton lives in Burnley, Lancashire, with his wife and two foster children.
As the leading charity driving up standards of care in muscle centres, and improving services, we want to make sure everyone living with a muscle-wasting condition gets exce
After Ian was diagnosed with vacuolar myopathy, he chose not to let this affect his active lifestyle.
Having a long-term and rare muscle-wasting condition can mean that you end up seeing lots of people who are responsible for different parts of your care.
Hilary’s grandson is 9 years old and has Duchenne muscular dystrophy.
Finding effective treatments for muscle wasting conditions is an important priority of our research programme.
Research into potential treatments for muscle-wasting conditions is at an exciting point, with a range of drugs in late stage clinical trial.
Translarna is the first ever drug to potentially treat Duchenne muscular dystrophy, and one of the first for any muscle-wasting condition, to be approved outside of clinical trial.
Ellena Valizadeh, from Lewisham, London, made sure her son, George, 4, had a Halloween he wouldn’t forget, turning his wheelchair into a Batmobile so he could enjoy trick or trea