Jeff has chopped off his lockdown locks for MDUK thanks to barbers King & Captain of Thirsk.
Research into potential treatments for muscle-wasting conditions is at an exciting point, with a range of drugs in late stage clinical trial.
Translarna is the first ever drug to potentially treat Duchenne muscular dystrophy, and one of the first for any muscle-wasting condition, to be approved outside of clinical trial.
Ellena Valizadeh, from Lewisham, London, made sure her son, George, 4, had a Halloween he wouldn’t forget, turning his wheelchair into a Batmobile so he could enjoy trick or trea
I remember that day in August 2013 like it was yesterday. It was the worst day of my life.
We were absolutely numb.
Facioscapulohumeral muscular dystrophy (FSHD) is a muscle-wasting condition that causes weakness in the face, shoulders and upper arm muscles.
My daughter Mia is three. She’s too young to understand why her beloved big brothers are getting weaker and weaker.
Johnathon Byrne has a hard time believing how far his confidence has come and how much he has accomplished as an actor in such a short time.
The research workshops from the day are now available for you to watch online.
Thirty-four-year-old Dean Yorke is a DJ from Reading, Berkshire.
Forty-seven-year-old single dad, Mark Hall, from Leeds, West Yorkshire, has Becker muscular dystrophy. He lives with his two daughters, Emily, 16, and Olivia, 9.