Drivers from Arriva North East’s Darlington depot raised almost £750 towards a £50,000 target to find a cure for six year old Ryan Chidzey’s rare and fatal muscle-wast
Alison Porter’s sons William and Thomas, from Chorley In Lancashire, have both been diagnosed with Charcot-Marie-Tooth disease (CMT).
During Mitochondrial Disease Awareness Week (16-22 September), we’re featuring Jack Blackburn, a 19-year-old with this condition.
Playing Powerchair football has given Aston Walls the confidence to strive to be independent – including pushing his ‘able bodied’ school to allow him to fit in.
We sat down with Debbie Vaughan, mum to Harry who lives with a very rare type of congenital muscular dystrophy, about the Black Knight skydive taking place in September.
We chatted with Shelley Waite who decided to face her fears and do a skydive to raise money for MDUK, and having done it she says the feeling will stay with her forever.
Tireless Tyrone volunteer Claire O’Hanlon hasn’t stopped fundraising for Duchenne charities since her son Luke was diagnosed with the condition, aged 13 months, in 2012 and
Having been diagnosed with a muscle-wasting condition and attending MDUK events, Patricia knew the value of her experience when sharing her story.
We’re committed to funding the best and most relevant science for the people we support, so we have a ‘gold standard’ review and selection process.
Louise Halling, her husband, Mark and their seven-year-old son, Jacob, live in West Berkshire. Jacob was born in Australia, where the family lived for several years.
Hayley Lloyd is a single mum living in Warwickshire with her 13-year-old son, Tommy, who has limb girdle muscular dystrophy, LGMD2E.