The Yorkshire, Humber, and the North East (YHNE) Neuromuscular Network seeks to improve access to neuromuscular care across the region.
The network is chaired by Dr Anne-Marie Childs, Dr Channa Hewamadduma, and Dr Chiara Marini-Bettolo.
The Steering Group has representatives from Sheffield Teaching Hospital; Sheffield Children’s Hospital (Ryegate Centre); Leeds Teaching Hospital; Leeds Children’s Hospital; John Walton Muscular Dystrophy Research Centre, Newcastle; Hull University Hospital and Bradford University Hospital.
The network meets several times a year to discuss current developments in the area, including:
- Support the coordination of neuromuscular care across primary, secondary, and tertiary services
- Exchanged services updates, case studies, and other information to develop professionals in the region
- Working in identifying gaps in neuromuscular services in the region and knowledge sharing and exchange between services
- Promote awareness of service provision across the region, looking at hospital services, patient flows, outreach clinics and local and independent support services
- Ensure neuromuscular disorders and associated needs are understood by commissioners and local teams resulting in more effective care
Past events and activities
- Upskilling event for neuromuscular AHPs and CNS on Duchenne muscular dystrophy and Spinal Muscular Atrophy
- Developed strategic adult neuromuscular pathway, including rehabilitation pathway, respiratory and cardiac pathway, and palliative care pathway for services in the region
- Free information days and workshops for people with muscle wasting and weakening conditions and their families
- Scoping services exercises to identify gaps in neuromuscular services in the region