Congenital myotonic dystrophy webinar

This free, informative, and supportive session will cover topics relevant to paediatric and adult care. It is open to friends, family and carers.

This session is sponsored by Lupin and PTC.

What you will gain

• Updates on groundbreaking research and treatments.
• Practical advice for living well with congenital myotonic dystrophy.
• The opportunity to have your questions answered by leading experts in the field.

Our webinars are hosted on Zoom, making it easy to join from anywhere in the UK. Don’t miss this chance to gain valuable knowledge directly from specialists!

What to expect

Hear from leading experts who will share insights on key topics related to congenital myotonic dystrophy. The panel includes:

• Dr Nikoletta Nikolenko, Senior Clinical Research Associate.
• Peter Ashley, Founding Trustee and Chair, Cure Myotonic Dystrophy UK.
• Dr Sithara Ramdas, Consultant Paediatric Neurologist.
• Nick Emery, Neuromuscular Clinical Specialist Physiotherapist.
• Dr Bob Ballantyne, Specialty Doctor in Clinical Genetics.
• Dr Jodi Allen, Clinical Specialist Speech & Language Therapist (Neurology & Neuromuscular).
• Dr Jane Heraghty, Paediatric Respiratory Consultant

Key information

The webinar will be recorded and shared with all registrants. Register even if you plan to watch it later.   

Important note: Webinars are for informational purposes only and should not replace professional medical advice. Please consult your neuromuscular clinical team or health professional if you have concerns.  

We look forward to seeing you there!