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Webinars

Our free webinars offer you the opportunity to hear from expert speakers, share your experience and ask questions. They are held on Zoom so you can join from wherever you are in the UK.

Each webinar will focus on a specific topic, such as helping you understand more about your condition, sharing the latest information about treatments, or providing updates on research. As well as people living with a muscle wasting or weakening condition, they are also open to friends, family members and carers.

Past webinars

All webinars are recorded and added to our YouTube channel. Some recent webinars are shown below.

Our virtual information seminars are a source of information but should not replace direct advice from a specialist consultant or health professional. If you have any concerns, you are advised to speak with your neuromuscular clinical team or health professional directly.

Spinal Muscular Atrophy

Thursday 15 February 2024. Virtual Information Seminar.

Sponsored by Roche and Biogen.

Collagen VI

Monday 11 March 2024. Virtual information seminar.

Myasthenia gravis (adults)

Thursday 15 February 2024. Virtual Information Seminar.

Sponsored by Argenx.

Palliative Care

Wednesday 13 December 2023.

Virtual information seminar.

Pompe disease

Wednesday 29 November 2023. Virtual Information Seminar.

Becker muscular dystrophy

Wednesday 18 October 2023. Virtual Information Seminar.