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Condition WhatsApp groups

We have WhatsApp groups open to people living with Becker muscular dystrophy, Charcot-Marie Tooth disease, Duchenne muscular dystrophy, facioscapulohumeral muscular dystrophy, limb-girdle muscular dystrophy, oculopharyngeal muscular dystrophy and Ullrich congenital muscular dystrophy.

Join a group to meet new people, share experiences, and get advice in a friendly and supportive environment. The group is monitored by our staff and volunteers who are also available to provide support, information, and advice. 

To join our WhatsApp groups and help keep them a welcoming space for all, read our WhatsApp groups joining criteria, rules and safeguarding.

Contact Information

Name(Required)

First Last

Date of Birth(Required)

Email(Required)

Phone(Required)

Address(Required)

Street Address Address Line 2 City State / Province / Region ZIP / Postal Code Country

Terms and Conditions

I confirm that I am living with a muscle wasting or weakening condition(Required)

Yes

I confirm that I am a parent of someone living with a muscle wasting or weakening condition(Required)

Yes

Type of muscle wasting condition

I confirm that I agree to the group rules(Required)

Yes

I confirm I meet the joining criteria, and I understand that my mobile number will be visible to others in the WhatsApp group I am joining.(Required)

Yes

Keep in touch

Stay connected with our community

SMS

Phone

Please don’t contact me by post

We will never share your details with anyone. We will only contact you in the ways that you wish, making use of the information you’ve told us (including your muscle-wasting condition) and publicly available information. We want to make sure what we communicate with you is relevant to your interests. Our privacy policy is available on our website or by phoning 0300 012 0172.

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Whats-app Group

More about your condition

Condition A-Z

Discover symptoms, causes, diagnosis, and treatment for over 60 muscle wasting and weakening conditions in our detailed A-Z guide.

Condition A-Z

Our research projects

We fund pioneering research for better treatments to improve people’s lives today, and to transform those of future generations.

Our research projects