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Condition WhatsApp groups

We have WhatsApp groups open to people living with Becker muscular dystrophy, Charcot-Marie Tooth disease, Duchenne muscular dystrophy, facioscapulohumeral muscular dystrophy, limb-girdle muscular dystrophy and Ullrich congenital muscular dystrophy.

Join a group to meet new people, share experiences, and get advice in a friendly and supportive environment. The group is monitored by our staff and volunteers who are also available to provide support, information, and advice.  

To join our WhatsApp groups and help keep them a welcoming space for all, read our WhatsApp groups joining criteria, rules and safeguarding

Condition WhatsApp groups

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We will never share your details with anyone. We will only contact you in the ways that you wish, making use of the information you’ve told us (including your muscle-wasting condition) and publicly available information. We want to make sure what we communicate with you is relevant to your interests. Our privacy policy is available on our website or by phoning 0300 012 0172.